hello! my name is kelly i am an achondroplasia dwarf i am 37yrs old.
my 7yr old daughter is also an achondroplasia dwarf.we live in cahokia
illinois its about 15 min. away from the gateway arch in st.louis mo.
i am looking for people to talk to friends to make(hopefully)questions
to ask and hopefully answers.i have been recently to many drs.
neuroligists,ear nose throat drs had 10 mris on brain 6ct scans i have
a lot of problems also now they say nerve problems i have to see
another neuro dr. each dr i go to has a different opinion and none are
familar with any types of dwarfs or dwarfisms at all they tell me well
i can look it up!that is not a good answer for me.every dr has a
different cause and effect i have also been told i have mastoiditis i
know i am in a LOT of pain everyday and am on percocet for pain and a
lot of other meds. it does not seem to help though!does anyone have
any suggestions or answers please let me know,each day seems harder
and harder to get through each day. please let me know of any
suggestions or answers or if you would like to write me and talk more
feel free to do so!! thankyou for your time ,kelly