My nephew is 22 years old. He was diagnosed with achon at birth, but
his parents have never really accepted this or even discussed it with
him. They keep him very sheltered(for their own purposes) and he
lives at home and does not have access to a computer where he could
log into a chat room, as I have done, to connect with other people
with achon. We live in the ALbany NY area. Does anyone know how I
would go about finding a local support group? He needs to find people
who can relate to the issues that he faces.

Kathie Adams
Concerned Aunt to a wonderful young man.