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Another newcomer!   Message List  
Reply | Forward Message #103 of 184 |
Re: [achondroplastic_dwarfism] Re: Another newcomer!

Hello Jill,james and caela this is Michelle.  I have achondroplasa.  and I'm a mother with 3 kiddos that have it.  we have shorter arms and legs.  Smaller feet and well the weight I work really hard at keeping down.  It is hard if you would like more information as to what I know and have gone through you can email me at carlislemom@... I would be glad to give you what I know and have gone throught its a lot but things get better.  Lots of luck and god bless
Michelle

James and Caela <caela@...> wrote:

Hi Jill,

I must confess, I haven't been here much! I don't have achondroplasia
but my 6 year old son does.
You are right that  achondroplasts have shorter arms and legs, average
size body and a larger head. If you sit next to your boyfriend, you
are probably about the same height!
So I am learning as I go along too.
I would really encourage both you and your boyfriend join LPA (think
you said you live in America). You will meet lots of other little
people and families of LP's. You will learn a lot too!

Sounds like your boyfriend is very healthy. One thing I have learnt is
that LP's often have problems with weight control. Keeping the weight
down helps avoid problems with the back and legs. Often achons need
surgery on their backs for "stenosis". 

Also do searches on achondroplasia.....there's a wealth of information
out there!


Caela




--- In achondroplastic_dwarfism@yahoogroups.com, "jill_martin2003"
<jill_martin2003@y...> wrote:
> Hello Caela,
>
> I have a boyfriend that has achondroplasia, and him nor I know much
> about it. All I know is all achondroplasia's have short arms and
> legs. He also has a caved in chest (not sure what its real name is).
> Do you have msn, yahoo, or aim....if so what is your user name?
>
> Jill
> --- In achondroplastic_dwarfism@yahoogroups.com, "James and Caela"
> <caela@i...> wrote:
> > Hiya
> > I was just looking around and found this site. I already recognise
> > some members!
> > I am Mum to 4 children, the youngest of which has achondroplasia.
> He
> > is 5, and we live in New Zealand. Jeremy has recently started
> school
> > and is a bright wee boy and doing very well.
> >
> > Caela





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Sun Feb 6, 2005 3:13 am

giggle272002
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Message #103 of 184 |
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Hiya I was just looking around and found this site. I already recognise some members! I am Mum to 4 children, the youngest of which has achondroplasia. He is...
James and Caela
jamescaela
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Dec 30, 2003
4:45 pm

Hello Caela, I have a boyfriend that has achondroplasia, and him nor I know much about it. All I know is all achondroplasia's have short arms and legs. He also...
jill_martin2003
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Sep 18, 2004
2:46 pm

Hi Jill, I must confess, I haven't been here much! I don't have achondroplasia but my 6 year old son does. You are right that achondroplasts have shorter arms...
James and Caela
jamescaela
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Feb 4, 2005
7:54 am

Hello Jill,james and caela this is Michelle. I have achondroplasa. and I'm a mother with 3 kiddos that have it. we have shorter arms and legs. Smaller feet...
helda black
giggle272002
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Feb 7, 2005
6:48 pm
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