This is a support eGroup for persons affect by Achondroplasia, family and medical professionals interested in providing information and/or support for affected...
David Hughes
egroups_moderator@...
Jun 4, 1999 9:28 pm
2
I see that no one has shared their story here. Would anyone be interested in starting?...
David Hughes
rarediseases@...
Jun 11, 2000 7:09 pm
3
I am Angie, 36, average, ((well--I fit into the big and tall category...I am overweight and 5' 8½" . I am a lesbian...I have a partner, Barbara, 54, and we...
Hello,my name is Sharon.I come from a family of 8 and I am number 7,but the only one small.There is no history of dwarfs in my family.I am 38,married,and have...
I am not a dwarf, but I am very much a friend of the LP's...I had a sweet friend back in New Mexico who I have lost touch with...Her name was Jane, and she...
Dear Angie: I received your letter and I would like to chat with you anytime,but right now I am having health problems.I wish when I go in the hospital that I...
Hi Sharon: How are you? My name is Hedieh Ferydooni.I'm 20 years old.I have achondroplasia and I have 3 brothers but they are healthy. I live in Iran/Tehran.I...
I hope my experiences may be of interest to someone. I am 43 and Achon. I live in the U.K. with my 10 year old son. Since birth I have never slept properly. My...
At 43 my life's evolved Alone again, no hand to hold My luck with life and love's been sparce The road so far's been bumpy and harsh I need a friend, someone...
First of all, Amanda, I would like to say, "Nice Poem!!!" Secondly, while I am neither an LP nor a guy, I'd like to be your friend. I can't say strongly...
Hello my name is Jill....I am not an Achondroplasia but I have a boyfriend who is, and I am looking for more information on Achon. So if any one can help me I...
Dear David: I could answer that question.I am ach....,married to a regular man.I also have one son that is 6"1,and my younger one is like me.You have 50%,like...
hi i have an achondroplasiac son,he is 3 yrs old,he was breast fed till 30months old.yet,this caused him a problem:most of his teeth are infected with dental ...
To: All Group Members From: Group Founder As Founder of this group and the Global Health Network's - International Center for Disease Support, I am proud to...
Hello my name is Jill....I am not an Achondroplasia but I have a boyfriend who is, and I am looking for more information on Achon. So if any one can help me I...
Dear Members: My name is Sharon(some of you kinda know me).I live in ... first son ... doctors ... was first ... that he ... me.They did a ... death,acid in ...
Hi ppl I was looking for friends (hopefully close to my age) to talk.I am 22/m/oh I have a pic on my profile. U can talk to me on messanger with screenname...
Hi, MMmm well what am I suppose to call u..anyway as u haven't mentioned ur name..Hi-------- I'm Rana.. 20(dis nov.)/F/.......Well I would love to make friends...
Dear Barbara:If I were you go see neur.....,you probably fractured one of your discs in your spine.I went kind of too late.Many years ago,the pain in my back...
Hi my name is Shawn. I am a new member to this group so I thought I would stop by and introduce myself to everyone. So here I am. I am from BC, Canada. I work...
Hey Hii.. Nice to meet u..I'm Randika from Sri lanka.. Currently in UAE with my parents. I'm a teacher at a Special needs school. Works fun! Hope to hear from...
Hi i am new to the group. i am looking for a lil people group in the cincinnati area. if anyone as any information please email me at hnyblck@.... thank...
