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achalasia · A MyHealthShare International Community

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Group Information

  • Members: 2430
  • Category: Advice
  • Founded: May 29, 1999
  • Language: English
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Hi everyone!! I am so grateful to have found this site!! I was just diagnosed at Beth Israel in Boston after being told I had acid reflux by local GI. The fact...
16 Nov 4, 2008
5:23 pm

Ann Higgs
lilac_blosso...
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"I know I'm doing the right thing by having the surgery, but my anxiety is still there nonetheless. In my 47 years this will be my first big surgery other than...
2 Nov 3, 2008
11:51 pm

tracy21261
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Hi all, Dr. Rosemurgy did my heller's on 10/28 at USF Tampa General. It only took about 2 hours and my incisions are 4 holes at the diaphram plus a belly...
7 Nov 3, 2008
7:42 pm

Eloisa Herberger
e.herberger
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Hi all, As I am doing so extremely great lately I thought it was about time for me to post this here on the board! As most of you know the time after my...
9 Nov 3, 2008
4:23 pm

Ann Higgs
lilac_blosso...
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Does anyone else have any relatives with achalasia?? My grandmother also has it and I told the drs. and TCC and they did not believe me. They said it is...
9 Nov 3, 2008
4:07 pm

michelle
zlmmom1
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Hello all. I haven't posted in awhile. I want to say that this group is just awesome, I joined the GERD group also and this one is much more active and...
1 Nov 2, 2008
10:30 pm

geminiblue_99
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Hi all,   Earlier this evening Dr. Gockel from Germany asked Michelle and me to help in her search to find further achalasia families. As you might remember...
1 Nov 2, 2008
8:30 pm

Isabella Arnold
arnoldisabella
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Dear Group I haven't posted recently. I finally saw a GI in Flagstaff 2 weeks ago & he scheduled an EGD & motility test for Nov 13. Getting harder to wait, gee...
12 Nov 2, 2008
1:08 am

susiedu
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Hi, My father, who has achalasia, had a j-tube installed about 2 months ago in a foreign country. He got moved from the main hospital to a chronic care...
7 Nov 1, 2008
8:48 am

Isabella Arnold
arnoldisabella
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Hi Julie I have a message to pass onto you from Ann Higgs she says good luck on your trip to the Mayo. Ann is away on holiday at the moment so has contaced me,...
2 Nov 1, 2008
1:14 am

Julie C. Warren
juliecwarren...
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Hey all - I just went this last weekend to see Dr. Luketich in Pittsburgh. It was a brutal drive and I had a cold on top of it but it was worth it!! for anyone...
3 Oct 30, 2008
2:58 pm

michelle
zlmmom1
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I just wanted to say Hi to everyone, I'm new to the list and hope to learn a few things. I was diagnosed with achalasia back in october of 2003 and had...
31 Oct 30, 2008
6:33 am

notan ostrich
notan_ostrich
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hey Lesa - I feel your pain. I am now 40 and just had an -ectomy done this past Jan. It was brutal for awhile but now that I'm on the other side WOO HOO - I'd...
3 Oct 30, 2008
1:10 am

ayondatta
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WOW ITS HARD TO BELIEVE ITS BEEN 2 YEARS SINCE HIS OPEN PROCEDURE AT CLEVELAND! I AM SO BLESSED THAT HE HAS CONTINUED TO DO SO WELL WITH NO PROBLEMS.I HOPE...
6 Oct 28, 2008
11:44 pm

countrybink
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13 months after my husband's Heller Myotomy and he's having more and more difficulties swallowing everyday. Yes, it's better than last year, but the surgery...
5 Oct 28, 2008
11:25 pm

Brian Hyden
bcsk8r
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I just got back from the Cleveland Clinic where I had my first dilation (Maloney dilator) since my esophagectomy last Feb. 25. I had gotten so I was...
7 Oct 28, 2008
10:11 pm

sandragphipps
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Hi guys,   I sent James a card at your home address. I hope you like it.               Love,                   Tia in Sequim,...
1 Oct 28, 2008
2:06 am

Cathy Bourm
cbourm
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Hello all! I know it has been a while since I have been on here, but I wanted to let you all know I am doing fine :) Surgery was on June 20 in Seattle at...
19 Oct 27, 2008
12:41 am

KG
mskgee22
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Hi, I just wanted to send an update. I first wrote the list in April after experience trouble eating and learning that I had a dilated esophagus (for at least...
1 Oct 24, 2008
11:35 pm

tjl567@...
tj67lanza
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Hi there... I've been a pretty silent member of the group but have been around for awhile. I have a question for you guys, as I am not convinced of what the...
16 Oct 24, 2008
11:02 am

Ann Higgs
lilac_blosso...
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Hi all, I haven't posted in about 1-1/2 years but read the postings often for advice. I see alot of post op reports but what about preop? I had to lose 30...
3 Oct 23, 2008
2:06 pm

Eloisa Herberger
e.herberger
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Hi all, Today when I was in hospital for my dilatation I asked the gastro-enterologist about the spasms I have been having lately. He wasn't surprised at all!...
8 Oct 23, 2008
12:16 pm

Christine Hulmes
christine.hu...
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I am pissed that my drug plan refused to cover my Botox. It cost me 403.69 and now I'm not getting that back. My dr and I filled out the right forms and he...
6 Oct 21, 2008
1:43 pm

Jamie McRae
jamiemcrae33
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Dr. Gockel - I am seeing Dr. Luketich next weekend for a dilation. I will email his assistant and ask them to have a release form ready for me to sign while...
1 Oct 20, 2008
12:31 pm

mcnairmichelle@...
zlmmom1
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Hi all, Although I haven't posted much, I try to read all and have learned alot from you. I've had achalasia for 21 years and knew nothing about the myotomy...
19 Oct 20, 2008
11:36 am

Ann Higgs
lilac_blosso...
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I am not really concerned which verb anybody wishes to use to describe what was done to my LES in May 2006.  I simply bless the day that the ability to eat a...
3 Oct 18, 2008
9:40 pm

Rebecca Venable
rmvenable
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Hi Zlatko, In your post you mention that research of removed e. probably won't bring us much, as you think there are too few e. to research and those that can...
1 Oct 18, 2008
2:02 pm

Isabella Arnold
arnoldisabella
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Hey Isabella - I copied my reply to Dr. Gockel on your private email Hey Group - a while back, Isabella had posted the contact info for Dr. Gockel in Germany...
2 Oct 18, 2008
7:36 am

notan ostrich
notan_ostrich
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I was going through stem cell research and stumbled upon this patent article which talks about many gastrointestinal ailment treatment, including achalasia,...
17 Oct 18, 2008
2:41 am

let45ride
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Hi all - I am now almost 5 wks. past surgery and things go down well. However, I still have the constant burps no matter whether I eat or drink, they are there...
4 Oct 17, 2008
2:48 pm

Jamie McRae
jamiemcrae33
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