Open forum for persons affected by this rare disorder, family and medical professionals seeking to provide informaion and/or support for them. Group Manager:...
2
METI3@...
Nov 7, 1999 2:13 am
I'm new to this group and not sure of what I'm doing here. However, I have achalasia for over 12 years now and have been dilated 7 times up to now. The last...
3
EWagner593@...
Nov 7, 1999 4:54 am
Hello from Elena! I've had achalasia for 3 years now, first doctors thought I was crazy, then I had two botox injections, then a dilation. Just three weeks...
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howard@...
Nov 8, 1999 12:43 pm
I am about to go in for a dilation, and would like to know what others have experienced....
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Kelly Wickman
kwickman@...
Nov 8, 1999 1:18 pm
Hi! I had two dilations. The first was using the guide wires to do the procedure, and I had no relief at all. The second was using a balloon device, and I...
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EWagner593@...
Nov 8, 1999 6:40 pm
Hello Howard: My name is Elena and I've had the dilation. You receive a sedative then the doctor inserts an endescopic camera and performs the dilation...
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bonin@...
Nov 9, 1999 12:59 am
I am doing some research and have done a lit search through Ovid on Achalasia. I am looking to see if trauma can induce this disorder. Of the literature I...
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EWagner593@...
Nov 9, 1999 1:15 am
Dear Irene: Send your questionnaire to EWagner593@.... I don't know if I will be of any help to your study but I'm willing to share my achalasia story....
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Kelly Wickman
kwickman@...
Nov 9, 1999 12:32 pm
Irene - feel free to email me directly regarding my achalasia. I am willing to help your study in any way!...
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METI3@...
Nov 9, 1999 2:42 pm
Hello Elena, Glad for your response. It's good to hear from someone else who understands what living with this problems like. I was lucky to find a ...
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METI3@...
Nov 9, 1999 7:20 pm
Hello Elena, I bought my hot plate last year sometime but can't remember just where. It's made of granite, looks like a tile that measures 6 "by 6" and has ...
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EWagner593@...
Nov 9, 1999 10:16 pm
Thank you Claire - I've already been "researching" LOL finding such a plate on the net. Best regards, Elena...
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mcardery2k@...
Nov 11, 1999 4:20 am
Hello, I am new to this so I hope I am doing this right. I am a 48 year old male who had surgery at Cleveland Clinis in 1995. I started in 1990 having problems...
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METI3@...
Nov 11, 1999 2:31 pm
Hi Mark, I am also new to this site. When You say you had surgery what kind? I have been dilated 7 times up to now and asked my doctor how many times I can...
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METI3@...
Nov 11, 1999 2:35 pm
Hi Elena, Were you successful in finding the hot plate on lol?...
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MCarderY2K@...
Nov 11, 1999 3:12 pm
Hello, They actually went in and cut the esophogus where it was pinched off and it really helped. I guess the muscles will never work again but I am able to ...
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MCarderY2K@...
Nov 11, 1999 3:18 pm
Here is the link. Mark~ <A HREF="http://www4.ccf.org/health/health-info/docs/1300/1368.HTM">Minimally Invasive Surgery for Achalasia</A>...
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MCarderY2K@...
Nov 11, 1999 3:23 pm
Hello, Here is a little more info. explaining why the surgery is the best way to go. Mark~ <A...
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METI3@...
Nov 11, 1999 4:42 pm
Hi Mark, Sounds like your surgery was good for you. I live in New Bedford Ma. Closer to Boston and Providence, RI. Cleveland would not be an option for me. I...
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EWagner593@...
Nov 11, 1999 5:52 pm
Hi everyone, I'm a little surprised your doctor told you that dilation can be done as many times as necessary. My understanding of the procedure is that each...
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EWagner593@...
Nov 11, 1999 5:58 pm
Hello - I had the Heller's myotomy on 10/20/99. The articles you forwarded me suggest the surgery "as easy as one-two-three". My surgery was three hours long...
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EWagner593@...
Nov 11, 1999 5:59 pm
How long after the surgery did the problems start again?...
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MCarderY2K@...
Nov 11, 1999 6:09 pm
Hey, Sorry I made you think it was easy. It was the toughest thing I ever went through in my life. My surgery was 5 hours long but I was to the point that I ...
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MCarderY2K@...
Nov 11, 1999 6:11 pm
I think the problems started again because I did not follow my diet. It started again after about 3 months but nothing like before the surgery. I still sleep...
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EWagner593@...
Nov 11, 1999 11:08 pm
What kind of a diet do you follow? Did you visit a nutritiionist for this diet or just avoid certain foods like we all do?...
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EWagner593@...
Nov 11, 1999 11:10 pm
Hi Mark - the articles made it sound easy, I KNOW it's really hard. How are you recovering? I wasn't allowed to drive for two weeks following the surgery....
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Kerryosb@...
Nov 13, 1999 12:11 am
Hello, I'm not sure what this is all about, but would like to hear from others who live with thing called achalasia. I was ninteen when my problems began and...
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METI3@...
Nov 13, 1999 2:52 pm
Hi Kerry, I too have had achalasia for 13 years now. So far I've been dilated 7 times, the last time in Sept. I'm hoping it will be the last time but I don't...
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METI3@...
Nov 13, 1999 3:09 pm
Hello again Elena, Don't know if you found the hot plate yet but I remembered where I sent for it. Found the catalogue from last year. It's Dr. Leonard's ...
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Kelly Wickman
kwickman@...
Nov 13, 1999 7:10 pm
Hi Kerry, my name is Kelly. I have had 2 dilations and just had a myotomy on November 1. You say you have had 2 myotomies? I am 24, my problems started last...
