... looks ... to ... start ... pounds, ... therapists ... are ... Hello Littledebif! I dont know or have heard of any child to use a wheel chair, however,...
Hi all, Just an update and a note re mobility - hope everyone's doing ok. We are having a dodgy week! Joes starting to loose his temper and throw things at my...
Hi again, I forgot to say that re mobility Joe walks like a cowboy that's been riding all his life and James and Joe both fall over all the time (hypotonic)...
... been riding all his life and James and Joe both fall over all the time (hypotonic) but neither need a wheelchair (Joes still a bit too young to tell) so...
Hi. Thanks for your reply. When my family moan about stuff I usually say 'try living in my world'. Well it seems ive actually found that you do live in the...
Hi all, Nathan has usual sleep patterns.....he seems to go from one extreme to an other, for a month or more he sleeps fine then all of a sudden for the next 3...
Hi sandy - the boys heads were measured two weeks ago, I cant remember the exact measurements but James' was about 4cms larger than mine and joes was way above...
hi Michelle, I would ask how things are going, but I probly have a good clue! We are doing okay. What you where describing with the throwing things and stuff,...
hello there. I can relate to the "big" head. Devons head is just as large as mine if not larger. He is perfectly proportioned though. His whole body is big. ...
hi. I actually have heard of a child in a wheel chair with weavers. It was a little girl, I beleive fron Turkey. She had a lot of mobility issues. She was in a...
How are things? Sorry to hear about Devon troubles! I think anyone who stays home all day with kids especially kids with extra needs, is much harder and more...
Hello, Happy Mothers Day! I often tell my boyfriend (Devon's Father) that is a break for him to go to work, he gets to talk to someone besides kids and...
Hi everyone, I am the mother of a beautiful 21 month daughter called Emma Rebecca who is currently undergoing a series of test to determine her condition which...
Hi Dora and Emma - your story is never going to be boring as it is so great to chat to people that understand what its like to have a child with weavers - we...
... called ... weaver ... feed ... head ... month ... So ... the ... to ... for ... vocalize ... the ... her ... size ... she ... the ... specialist ... recent...
Hello Dora, Happy Late Mothers Day. I am glad to have a new member in the group. I hope you do not feel so isolated now. I felt the same way! This group is...
Hi my son is 3 yrs old and he was diagnoised @ 14 mths. He iis 3 1/2 ft tall(same size as my 6 yr old son). He has alot of delayed and has alot of health...
Hi and welcome to our support site....Its lovely to have another new member, hopefully you will find our site informative and a place were you can ask any of...
hello, my name is April, I also have 3 1/2 yr. old boy with weavers.He started pre-school last November.That was a whole new experience for the whole family!!...
... were ... concerns, ... and ... Hello I will gladly tell you how it goes when i return from Dr. Weaver I am hoping to get alot of useful information from...
... new ... Weaver! ... little ... pediatrician's office a couple of weeks ago and saw a doctor who had never seen Brandon. He was very interested in Weavers....
... 1/2 ... has ... any ... has ... and ... To answer your question about immune problems... My son has a very weak immune system. We have never had it...
Hey , Shane was sent to an immunogist when he was about 3 mths old due ro his respitory problems and he done blood work to check and that is what actually...
... called ... weaver ... feed ... head ... month ... So ... the ... to ... for ... vocalize ... the ... her ... size ... she ... the ... specialist ... recent...
Hi, how is every one doing? We are doing good. I actually have some good news from Devons speech theripist. Last Friday for the first time ever, Devon has a...
... some ... old ... am ... just ... of ... an ... brain ... trying ... his ... note ... Hi April! What brilliant news about Devon's speech! you must be on...
Dear all Thank you for all your messages of support.. its hard to respond to them all individually so i am sending this all round message instead! I too have...
Hello every one. Today we had Devons last appiontment with Dr. Mark Derby. He is at Gonzaga University, and runs a behavioral clinic. I am a little overwhelmed...
Hi, its me again. I have heard a couple of parents say that their child has problems eating, they choke? Devon has been tube fed from 1 year old untill just...
Hi....Great news about all the extra help that is available for you & Devon! I hope you get it all sorted very soon and in place, so you both can benefit from...
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