Nathan is a boy of extremes, I would not describe him as a hyperactive child, he is calm and more `in himself' very focus when indulging in activities that...
Hey everyone….. Hope everyone is ok! I thought I would drop a line to update on Nathan's progress plus ask everyone a big favour? One of the doctors Nathan...
Hi Janis, I have already given Jennifers address to his teacher, although they may need another address to send a fellow students to, if so would you still be...
Hi, hope everyone is doing fine! My son, Devon (who just turned 8) is doing a project in his 2nd grade class. They made flat students (out of paper) and took...
Hi everyone. Hope this finds all well. We have new members to the site and I wanted to introduce them to all of you. There names are Mark & Anne, they have a...
Hey everyone. Hope things are going great :) We have new members; Clay & Janis. There daughter is five and was diagnosed about a year ago, her name is...
Hello everyone! Hope everyone is doing fine! Summer is almost here, yeah! I am always ready to welcome in a new season! Just wanted to introduce you to our...
This a question to each and all..... Recently Nathan was diagnosed with Asparagus, which got me wondering, how many of our kids with Weaver Syndrome, exhibit...
Hi sandy - the boys heads were measured two weeks ago, I cant remember the exact measurements but James' was about 4cms larger than mine and joes was way above...
I couple of weeks ago we received a phone call from Nathans school reporting to us that something serious had happened in school involving Nathan! As you can...
Hello everyone, hope all is well for you and your families! I wanted to introduce our newest member, Magda from Poland. She is the godparent of a recently...
Sorry I have not posted for a while.... I have been working in Edinburgh last week, what a beautiful city it is, it is really breath taking! Did anyone watch...
They have done comparative Genome Hybradisation on Logan, and one of the duplicates found were extra x chromosones in the rods and cones in his eyes. (hope...
Thanks for welcoming Sarah! She is a bit anxious about all this, as we all were. I am sure it will be very comforting for her to already have posts welcoming...
This is a fine mechanism to find others who are facing the same challenges! My son, Kendall, is 28. He works full time at our local airport as a wheelchair...
Hi Sarah, Welcome to the group. We;ll be looking forward to catching up with you Our gorgeous little boy is called Harry and is two and a half. He was...
Just wanted to welcome our newest member Sarah to the group. Welcome Sarah! She has a two year old and doctors are suspecting Weavers. You have come to the...
Hello everyone! I hope all is well for you and your families, Devon is doing good, behavior is still our/his biggest issue. We have been busy getting ready for...
Dear Members, As life gets busy and demands more and more of my time, I find that I need help keeping up with WSSA. I've chosen a member who has been known to...
Hi Girls Hope everyone is well and all getting excited about christmas. There hasnt been much activity on the site in a few weeks so just thought id post a Hi...
Hi all. Hope all is going well for everyone. I just wanted to post and tell eveyone Devon will be seven this weekend, my oh my how time flies! I have added...
Hi everyone, Hope you are all well. Just wondering if any of you have had problems with your little ones sleeping? Harry goes to bed at 8pm with a bottle -...
HI Everyone Hope everybody is well . I am wondering if any of the children have scoliosis?? While it is an indicator for the diagnosis not all children have...
Hi everyone, Hope you are well I see that some of you have contacted Dr Weaver directly - does he have a direct contact email or do I go through a hospital?...
Did all of your children have advanced bone maturation, exfoliating teeth and at what age if they have reached puberty, did they start at? Im having a few...
Hi all, Even though Harry is just over 26 months he dribbles a good bit - mainly because of the dreaded teething. I put bibs on him however he is getting a bit...
Hi everybody Hope you and all the children are well, I have a question for you all and maybe someone might have some suggestions ! Ha sanybody ever taught or...
Dear Members, Please welcome our newest member, Siobhanma! Warm Regards, Elizabeth P.S. if the first message got through, please forgive the spelling error on...
Welcome Sionhanma and family! I have a almost 7 year old son named Devon who was diagnosed at about 15 or so months of age with weaver syndrome. He also has...
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