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#462 From: "Sandy" <znandra40@...>
Date: Thu May 21, 2009 10:25 pm
Subject: Would anyone like to answer my question?
znandra40
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This a question to each and all.....

Recently Nathan was diagnosed with Asparagus, which got me wondering, how many
of our kids with Weaver Syndrome, exhibit or show signs of Autistic
characteristics/trait's within their behaviour

Also just how many have an actual diagnoses? because this just maybe significant
to Weaver Syndrome itself....There doesn't seem to be that much research going
on, I realize the 'few' affected by this disorder does not warrant research or
should I say warrants money to finance research! Maybe we should do our own?

All replies and comments appreciated

With Kind Regards

Sandy x





#463 From: "Jenny" <myjenny_80@...>
Date: Fri May 22, 2009 1:37 am
Subject: Re: Would anyone like to answer my question?
myjenny_80
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--- In WSSA@yahoogroups.com, "Sandy" <znandra40@...> wrote:
>
> This a question to each and all.....
>
> Recently Nathan was diagnosed with Asparagus, which got me wondering, how many
of our kids with Weaver Syndrome, exhibit or show signs of Autistic
characteristics/trait's within their behaviour
>
> Also just how many have an actual diagnoses? because this just maybe
significant to Weaver Syndrome itself....There doesn't seem to be that much
research going on, I realize the 'few' affected by this disorder does not
warrant research or should I say warrants money to finance research! Maybe we
should do our own?
>
> All replies and comments appreciated
>
> With Kind Regards
>
> Sandy x
>


Dear Sandy,
Earl just turned five last week and I have been asked if he was
autistic all his life. Ever since he was a baby he has exhibited behaviors that
are often seen in autistic children. the biggest is his inability to deal with
certain stimuli. his physical therapists had mentioned autism and i know they
did some tests but nothing ever really came from it. but i have also been
thinking about it alot lately, especially with all the coverage on autism these
days. and ur right, maybe we should just research it ourselves!!

Best Wishes,
Jenny





#465 From: Greta Holmes <g.lomom@...>
Date: Fri May 22, 2009 12:08 pm
Subject: Re: Would anyone like to answer my question?
g.lomom
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Sandy,

Abby as well was first diagnosed with pdd and autistic characteristics, until we received the Weaver diagnosis 6 months later.  She was also diagnosed with sensory integration disorder.  Abby is also very social and wants to meet everyone, talks to everyone.  She may not do it appropriately at times but does very well. 

Abby was recently diagnosed with ADHD (attention deficit hyperactivity disorder), and has started medication for it.  After trying three different meds we have finally found one that does well for her.

Abby will begin the 6th year in the fall and moving to the middle school.  A lot of changes are coming for her and I am very anxious to see how she does.

Hope this helps.  Best wishes to all for a great summer.

Greta


From: Sandy <znandra40@...>
To: WSSA@yahoogroups.com
Sent: Thursday, May 21, 2009 6:25:55 PM
Subject: [WSSA] Would anyone like to answer my question?

This a question to each and all.....

Recently Nathan was diagnosed with Asparagus, which got me wondering, how many of our kids with Weaver Syndrome, exhibit or show signs of Autistic characteristics/ trait's within their behaviour

Also just how many have an actual diagnoses? because this just maybe significant to Weaver Syndrome itself....There doesn't seem to be that much research going on, I realize the 'few' affected by this disorder does not warrant research or should I say warrants money to finance research! Maybe we should do our own?

All replies and comments appreciated

With Kind Regards

Sandy x



 
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