I have not posted for a while but I do check in every few weeks or so to see how everyone is doing... I'm a rather shy person but this group is unique and a...
Hi Sandy  I dont post that often either as im still new to Weavers and dont have much useful information to give at the moment. Happy Birthday for tomorrow...
They have done comparative Genome Hybradisation on Logan, and one of the duplicates found were extra x chromosones in the rods and cones in his eyes. (hope...
Hi Jacquie and Logan Thank you for Nathan's birthday wishes...Its so nice to meet you x I'm sure you have plenty to say or contribute Jacquie... but sometimes...
Happy Birthday Nathan!! Best of wishes for a wonderful day. It has been a while since I last posted. Not much new going on with Abby. She turned 10 in...
Hi, We are another of the infrequent posters to the forum but regularly read with interest how everyone is going. Our son Oliver will be 5 soon and is making...
Hey Greta & Abby Thank you for your reply x I'm glad that Abby is doing well its wonderful to hear some positive news...we have also been told Nathan's growth...
Hi Keira I'm not to sure but I found this on the following link about Dr David Weaver. www.healthgrades.com/directory_search/physician/profiles/dr-md- ...
Sandy, I love the new pictures you posted of Nathan. He is taller than his sister. Abby is now taller than me. I have to make her sit so I can brush her...
Hi Greta.... Sorry it took me a while to reply we went to stay in a log cabin in the welsh mountains ..a much needed break wow I know what you mean about...
Hello everyone, hope all is well for you and your families! I wanted to introduce our newest member, Magda from Poland. She is the godparent of a recently...
Welcome Magda. My name is Greta and I have a 10 year old daughter who was diagnosed with Weaver Syndrome at the age of two. I hope you find the answers you...
I couple of weeks ago we received a phone call from Nathans school reporting to us that something serious had happened in school involving Nathan! As you can...
... Hey Sandy, I understand what you are going through, even though Earl is not in school he is around other children alot and still has no speach ability so...
Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at...
Hi Jenny....thank you for your support its soooo appreciated...its the strange feeling of 'isolation' we are feeling it feels a bit like shock! we all deal...
Hi April... Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak...
No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually...
Hi Sandy... I am so sorry to hear of the difficult time you are having. Hang in there, it will get better. First of all you should find out what services...
Hi April I read the link you are right some very interesting facts! there was so many I could relate too and apply to Nathan and his behaviour I don't know...
No problem Sandy, glad I could help! This is what this support group is here for. Greta mentioned that many of the kids with weavers also have autistic...
Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
... Hello I am the mother of Shane I don't post very much but I felt the urge to do so this time. See my Shane has autism also (Aspergers to be exact) and he...
Hi April you know I don't really know? Nathans brothers Jonathan 23 and Jamie 18 when they hit puberty they just seemed to sailed through it apart from the...
Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Hello Danielle its nice to meet you.... I read your reply and your words made me cry and I don't cry often! but I can just tell that you know what your talking...
This a question to each and all..... Recently Nathan was diagnosed with Asparagus, which got me wondering, how many of our kids with Weaver Syndrome, exhibit...
... Dear Sandy, Earl just turned five last week and I have been asked if he was autistic all his life. Ever since he was a baby he has exhibited behaviors that...
Hi Sandy. I have researched this and talked to my sons geneticist, dev. pediatrician, and psychologist about this subject specifically. His geneticists says...
Sandy, Abby as well was first diagnosed with pdd and autistic characteristics, until we received the Weaver diagnosis 6 months later. She was also diagnosed...
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