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WSSA · Weaver Syndrome Support Association
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Messages 428 - 458 of 501   Oldest  |  < Older  |  Newer >  |  Newest
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428
Just wanted to welcome our newest member Sarah to the group. Welcome Sarah! She has a two year old and doctors are suspecting Weavers. You have come to the...
April
ahooburg79
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Jan 19, 2009
2:42 am
429
Hi sarah Welcome to the group.You are properably at a very raw stage at the moment .but without trying to sound condescending.....hang in there it definately ...
Selina Regan
reganselina
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Jan 19, 2009
11:34 pm
430
... moment .but without trying to sound condescending.....hang in there it definately  does get easier . ... we have all been through those awful new times...
Jenny
myjenny_80
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Jan 20, 2009
4:22 pm
431
Hi Sarah, Welcome to the group. We;ll be looking forward to catching up with you Our gorgeous little boy is called Harry and is two and a half. He was...
Siobhan Magner
siobhanma
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Jan 20, 2009
8:30 pm
432
This is a fine mechanism to find others who are facing the same challenges! My son, Kendall, is 28. He works full time at our local airport as a wheelchair...
alenecromar
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Jan 20, 2009
10:56 pm
433
Hi Alene, Thanks a million for your positive email - its great to hear that Kendall, at 28 is leading a normal life. We too are grateful to all the therapists...
Siobhan Magner
siobhanma
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Jan 21, 2009
10:34 am
434
Thanks for welcoming Sarah! She is a bit anxious about all this, as we all were. I am sure it will be very comforting for her to already have posts welcoming...
April Hooper
ahooburg79
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Jan 21, 2009
2:41 pm
435
I have not posted for a while but I do check in every few weeks or so to see how everyone is doing... I'm a rather shy person but this group is unique and a...
Sandy
znandra40
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Feb 7, 2009
6:49 pm
436
Hi Sandy   I dont post that often either as im still new to Weavers and dont have much useful information to give at the moment.  Happy Birthday for tomorrow...
jacqueline miller
jacq1976
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Feb 7, 2009
6:58 pm
437
They have done comparative Genome Hybradisation on Logan, and one of the duplicates found were extra x chromosones in the rods and cones in his eyes. (hope...
jacq1976
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Feb 7, 2009
7:09 pm
438
Hi Jacquie and Logan Thank you for Nathan's birthday wishes...Its so nice to meet you x I'm sure you have plenty to say or contribute Jacquie... but sometimes...
Sandy
znandra40
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Feb 7, 2009
9:35 pm
439
Happy Birthday Nathan!! Best of wishes for a wonderful day. It has been a while since I last posted. Not much new going on with Abby. She turned 10 in...
Greta
g.lomom
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Feb 8, 2009
4:16 am
440
Hi, We are another of the infrequent posters to the forum but regularly read with interest how everyone is going. Our son Oliver will be 5 soon and is making...
Keira James
jameskeira
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Feb 8, 2009
11:06 am
441
Hey Greta & Abby Thank you for your reply x I'm glad that Abby is doing well its wonderful to hear some positive news...we have also been told Nathan's growth...
Sandy
znandra40
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Feb 8, 2009
10:55 pm
442
Hi Keira I'm not to sure but I found this on the following link about Dr David Weaver. www.healthgrades.com/directory_search/physician/profiles/dr-md- ...
Sandy
znandra40
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Feb 8, 2009
11:16 pm
443
Sandy, I love the new pictures you posted of Nathan. He is taller than his sister. Abby is now taller than me. I have to make her sit so I can brush her...
Greta Holmes
g.lomom
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Feb 11, 2009
4:39 am
444
Hi Greta.... Sorry it took me a while to reply we went to stay in a log cabin in the welsh mountains ..a much needed break wow I know what you mean about...
Sandy
znandra40
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Feb 17, 2009
1:35 pm
445
Hello everyone, hope all is well for you and your families! I wanted to introduce our newest member, Magda from Poland. She is the godparent of a recently...
April
ahooburg79
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Mar 11, 2009
6:01 pm
446
Welcome Magda. My name is Greta and I have a 10 year old daughter who was diagnosed with Weaver Syndrome at the age of two. I hope you find the answers you...
Greta
g.lomom
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Mar 11, 2009
6:06 pm
448
I couple of weeks ago we received a phone call from Nathans school reporting to us that something serious had happened in school involving Nathan! As you can...
Sandy
znandra40
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Mar 21, 2009
5:21 pm
449
... Hey Sandy, I understand what you are going through, even though Earl is not in school he is around other children alot and still has no speach ability so...
Jenny
myjenny_80
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Mar 21, 2009
9:56 pm
450
Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at...
April Hooper
ahooburg79
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Mar 21, 2009
10:53 pm
451
Hi Jenny....thank you for your support its soooo appreciated...its the strange feeling of 'isolation' we are feeling it feels a bit like shock! we all deal...
Sandy
znandra40
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Mar 22, 2009
12:46 am
452
Hi April... Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak...
Sandy
znandra40
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Mar 22, 2009
1:09 am
453
No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually...
April Hooper
ahooburg79
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Mar 22, 2009
2:16 am
454
Hi Sandy... I am so sorry to hear of the difficult time you are having. Hang in there, it will get better. First of all you should find out what services...
Greta
g.lomom
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Mar 22, 2009
4:21 am
455
Hi April I read the link you are right some very interesting facts! there was so many I could relate too and apply to Nathan and his behaviour I don't know...
Sandy
znandra40
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Mar 23, 2009
12:21 pm
456
No problem Sandy, glad I could help! This is what this support group is here for. Greta mentioned that many of the kids with weavers also have autistic...
April Hooper
ahooburg79
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Mar 23, 2009
2:09 pm
457
Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Sandy
znandra40
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Mar 23, 2009
2:22 pm
458
... Hello I am the mother of Shane I don't post very much but I felt the urge to do so this time. See my Shane has autism also (Aspergers to be exact) and he...
ddauvenshine
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Mar 23, 2009
2:44 pm
Messages 428 - 458 of 501   Oldest  |  < Older  |  Newer >  |  Newest
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