Hi everyone, Hope you are all well. Just wondering if any of you have had problems with your little ones sleeping? Harry goes to bed at 8pm with a bottle -...
Siobhan, I understand your sleep deprivation. My daughter Abby is now 10 years old and sleeps great. However that was not the case the first four years of...
Thanks Greta - glad to hear I'm not alone! I try to wake him up also and usually he goes back to sleep straight away but by then I'm wide awake and ready for a...
Hi all. Hope all is going well for everyone. I just wanted to post and tell eveyone Devon will be seven this weekend, my oh my how time flies! I have added...
... and ... flies! ... amazed ... recent ... Hi April I posted some pics of earl at his birthday party this may he and devon do still look alike but now you...
Hi Girls Hope everyone is well and all getting excited about christmas. There hasnt been much activity on the site in a few weeks so just thought id post a Hi...
... was ... Glad to hear Charlie's well, looking forward to a surgery is not as much fun as looking forward to a present, but it sounds like he's being a very...
Hi Selena and the rest of you moms. We too are getting ready for the holidays. The kids are excited about Thanksgiving, this Thurs., and seeing all the...
Dear Members, As life gets busy and demands more and more of my time, I find that I need help keeping up with WSSA. I've chosen a member who has been known to...
Hello everyone! I hope all is well for you and your families, Devon is doing good, behavior is still our/his biggest issue. We have been busy getting ready for...
Just wanted to welcome our newest member Sarah to the group. Welcome Sarah! She has a two year old and doctors are suspecting Weavers. You have come to the...
Hi sarah Welcome to the group.You are properably at a very raw stage at the moment .but without trying to sound condescending.....hang in there it definately ...
... moment .but without trying to sound condescending.....hang in there it definately does get easier . ... we have all been through those awful new times...
Hi Sarah, Welcome to the group. We;ll be looking forward to catching up with you Our gorgeous little boy is called Harry and is two and a half. He was...
This is a fine mechanism to find others who are facing the same challenges! My son, Kendall, is 28. He works full time at our local airport as a wheelchair...
Hi Alene, Thanks a million for your positive email - its great to hear that Kendall, at 28 is leading a normal life. We too are grateful to all the therapists...
Thanks for welcoming Sarah! She is a bit anxious about all this, as we all were. I am sure it will be very comforting for her to already have posts welcoming...
I have not posted for a while but I do check in every few weeks or so to see how everyone is doing... I'm a rather shy person but this group is unique and a...
Hi Sandy  I dont post that often either as im still new to Weavers and dont have much useful information to give at the moment. Happy Birthday for tomorrow...
They have done comparative Genome Hybradisation on Logan, and one of the duplicates found were extra x chromosones in the rods and cones in his eyes. (hope...
Hi Jacquie and Logan Thank you for Nathan's birthday wishes...Its so nice to meet you x I'm sure you have plenty to say or contribute Jacquie... but sometimes...
Happy Birthday Nathan!! Best of wishes for a wonderful day. It has been a while since I last posted. Not much new going on with Abby. She turned 10 in...
Hi, We are another of the infrequent posters to the forum but regularly read with interest how everyone is going. Our son Oliver will be 5 soon and is making...
Hey Greta & Abby Thank you for your reply x I'm glad that Abby is doing well its wonderful to hear some positive news...we have also been told Nathan's growth...
Hi Keira I'm not to sure but I found this on the following link about Dr David Weaver. www.healthgrades.com/directory_search/physician/profiles/dr-md- ...
Sandy, I love the new pictures you posted of Nathan. He is taller than his sister. Abby is now taller than me. I have to make her sit so I can brush her...
Hi Greta.... Sorry it took me a while to reply we went to stay in a log cabin in the welsh mountains ..a much needed break wow I know what you mean about...
Hello everyone, hope all is well for you and your families! I wanted to introduce our newest member, Magda from Poland. She is the godparent of a recently...
Welcome Magda. My name is Greta and I have a 10 year old daughter who was diagnosed with Weaver Syndrome at the age of two. I hope you find the answers you...
I couple of weeks ago we received a phone call from Nathans school reporting to us that something serious had happened in school involving Nathan! As you can...
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