... HI and Welcome Selina! How old is your little one? I have a six and a half year old son. Where are you from? We live in the US. Hope to hear from you soon!...
Hi Selina! My name is Jenny and and I have a 4 yr old son. We live in the U.S. You've definately come to the right place for help!!! Hope to hear from you...
Welcome Jaquie & Logan! Glad to have you in the group. My name is April, and I have a 6 1/2 yr old son. He was diagnosed when he was about 1 1/2 -2 yrs...
I just wanted to welcome the new member to our group. I was so excited to finally see some activity again. My name is Greta and I have a daughter who is...
Hi April thanks for your mail we have Charlie who is just gone 6 also !!! we live in ireland and dont think there are any other children here that have the...
Thank you all for your welcome posts. I am mum to Logan who is 27mth and Kirsty who is 5. We live in Dundee in Scotland. Logan is the size and weight of a...
It is nice to meet you! My name is April and I have a now almost 7 year old son named Devon. It is hard to believe so much time has gone by, the days can seem...
Hi all, I am here again, my name is Csilla, Lõrinc's mum from Hungary. We have a new baby, his name is Szilárd, he was born in the end of January. He was big...
Csilla, I am happy for your new addition to the family! Congratulations! You have two children now? About the speech....How does your little guy breath? My...
Dear Members, Please welcome our newest member, Siobhanma! Warm Regards, Elizabeth P.S. if the first message got through, please forgive the spelling error on...
Welcome Sionhanma and family! I have a almost 7 year old son named Devon who was diagnosed at about 15 or so months of age with weaver syndrome. He also has...
Hi all, Delighted to have found this resource as I have very limited information about Weavers! We have a gorgeous 25 month old son Harry who was diagnosed...
Hi everybody Hope you and all the children are well, I have a question for you all and maybe someone might have some suggestions ! Ha sanybody ever taught or...
Hi! My son, Devon now almost 7 years old, has been involved in swim therapy for the last two years, (during the summer months). His therapist says with his...
Hi all, Yes - Harry loves the water also and we bring him to the pool on a regular basis. We haven't started lessons yet (only 26 months) however it would be a...
Hi all, Even though Harry is just over 26 months he dribbles a good bit - mainly because of the dreaded teething. I put bibs on him however he is getting a bit...
... he ... through ... etc? ... Hi Siobhan, We had the same problem with my son Earl, they said it was because of poor muscle control. No matter what he was...
Did all of your children have advanced bone maturation, exfoliating teeth and at what age if they have reached puberty, did they start at? Im having a few...
Yes, my sons bone maturation is advanced by 3 to 3 and a half years. His teeth came in at normal time, a little late if anything, but he lost them very early....
Hi April  Well I can honestly say im feel like im lost I cant seem to find answers anywhere. Logan has been sick for about the 6 mths in and out of...
First off, I would like to commend you on all you have already accomplished. It is hard knowing if you are doing the right thing when no one else seams to have...
Hi everyone, Hope you are well I see that some of you have contacted Dr Weaver directly - does he have a direct contact email or do I go through a hospital?...
I have talked with his assistant and him. I did find some of the information useful, I guess he put my mind at ease at the time... He is located in...
HI Everyone Hope everybody is well . I am wondering if any of the children have scoliosis?? While it is an indicator for the diagnosis not all children have...
Hi Selina, My son does have scoliosis, his is not too bad, they said about a 11% curve, although it is something we keep an eye on. On another group I belong...
thanks april!!! yes unfortunately surgery is very much an option!!! can you send me the info on that group for scolosis please. Â kindest regards selina ... ...
Hi Selina, I tried to contact you directly with your email address, it did not work.? Could you try to email me directly? ahooburg79@... I would like to...
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