Sorry I have not posted for a while.... I have been working in Edinburgh last week, what a beautiful city it is, it is really breath taking! Did anyone watch...
Hello, Ive just joined the group as two of my children have just been diagnosed with weaver. I have very little info so far (not had time to really look at the...
... diagnosed with weaver. ... group message etc yet) but I should be getting something from the genetics people soon (!). I have three boys, James 8yrs...
Hello, I am glad to have some new members in the group. WOW it is really rare to have two kids in the same family with weaver syndrome. From what our genetist...
Thanks for your replies, its great to know you are there and really interesting re Devon (give him an xtra snuggle from me ). James and Joe were both prem at...
... really interesting re Devon (give him an xtra snuggle from me ). ... were both really bad - I had severe pre eclampsia with both. When Joe was born in...
Hi Sandy, Joes first afternoon was great for him. When I ask him about nursery he just laughs so I guess that means he liked it lots! James is off school at...
... nursery he just laughs so I guess that means he liked it lots! James is off school at the moment so I left the windows and took James swimming which was a...
My almost two-year-old son was diagnosed with Weaver Syndrome at nine months. He has all the facial characteristics and skeletal features associated with...
I posted early in February and have read with interest the past postings. My son turned 25 last month and I remember when we were dealing with many of the...
Thank you so much for your message! I have heard of a 20(ish) yr. old boy with weavers., they are from Everett Washington. He is doing quite well, and is also...
my son devon is 3 1/2. He has been trying since birth, actually since pregnancy. He has undergone sooooo many surgeries (about 15 or 16), He hasn't had a...
Hi its Michelle again from Essex in the Uk, Just thought I would mention that it must be a trait to be happy and ok one minute and then flip the next. James is...
... and ok one minute and then flip the next. ... can take ages for him to calm down again. He is also very aggressive when this happens and will just 'fly'...
Hi April Did you get the E-mail I sent you? I'm having a few problems with my e- mailing at the moment. I sent it yesterday (24 April) please let me know! hope...
Here is some info on Weaver Syndrome I found on internet: Weaver syndrome Direct access to data Summary Weaver syndrome is an overgrowth syndrome characterized...
Hello Sandy, no I did not get your e-mail yet?! Sometimes I have trouble with mine as well. Try to send it again when you get the chance I usually reply to...
Hey Sandy, Just another quick note. I forgot to ask earlier, How is Nathan doing on tiolet training? Devon isn't!!:( And with the fits that he throws, almost...
Hi April in answer to your question regarding 'toilet training' I thought I would post this thread and talk about my experience thus far! Nathan out grew...
Does anyone have a child who is in a wheelchair? Right now, it looks as if Brandon will be in one. We are working on standing and gait training, but he is...
... looks ... to ... start ... pounds, ... therapists ... are ... Hello Littledebif! I dont know or have heard of any child to use a wheel chair, however,...
Hi all, Just an update and a note re mobility - hope everyone's doing ok. We are having a dodgy week! Joes starting to loose his temper and throw things at my...
Hi again, I forgot to say that re mobility Joe walks like a cowboy that's been riding all his life and James and Joe both fall over all the time (hypotonic)...
... been riding all his life and James and Joe both fall over all the time (hypotonic) but neither need a wheelchair (Joes still a bit too young to tell) so...
Hi. Thanks for your reply. When my family moan about stuff I usually say 'try living in my world'. Well it seems ive actually found that you do live in the...
Hi all, Nathan has usual sleep patterns.....he seems to go from one extreme to an other, for a month or more he sleeps fine then all of a sudden for the next 3...
Hi sandy - the boys heads were measured two weeks ago, I cant remember the exact measurements but James' was about 4cms larger than mine and joes was way above...
hi Michelle, I would ask how things are going, but I probly have a good clue! We are doing okay. What you where describing with the throwing things and stuff,...
hello there. I can relate to the "big" head. Devons head is just as large as mine if not larger. He is perfectly proportioned though. His whole body is big. ...
hi. I actually have heard of a child in a wheel chair with weavers. It was a little girl, I beleive fron Turkey. She had a lot of mobility issues. She was in a...
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