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WSSA · Weaver Syndrome Support Association
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Topics   (List as Individual Messages) Messages Latest Post

Hello! I have posted before but it's been a long time. My daughter Maura was diagnosed with Weaver's when she was 15 months old. She is now 2 1/2 and is 50...
8 Sep 3, 2007
1:18 pm

Greta Holmes
g.lomom
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Hi Sandy i have just read 1 of your emails and you did give something to smile at!!! yes the dreaded school uniform. I have been allocated the full grant which...
2 Sep 3, 2007
8:18 am

sandra239656
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I have been reading with great interest the posts of you young mothers. Our Kendall turned 27 this spring and I thought I'd write about some of our...
3 Sep 2, 2007
10:07 pm

Sandy
znandra40
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Dear Greta: In answer to your questions, Kendall has, over the years, grown to be quite a self sufficient individual. He does still live at home, but has an...
1 Sep 1, 2007
4:29 am

alenecromar
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Its been a long time since I was last a visitor here in this lovely group! Hi to everyone.....My name is Sandy, my son Nathan was diagnosed with Weaver...
7 Aug 27, 2007
9:10 pm

Sandy
znandra40
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My son is 3 and was diagnosed with Weavers at an early age. We've talked to doctors,teachers and therapists but it would be nice to talk to another parent....
3 Aug 18, 2007
2:15 pm

April Hooper
ahooburg79
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Hi! I am Csilla from Hungary, my son, Lőrinc (2 years old) has Weaver syndrome, which had been diagnostised one year ago. Unfortunately we do not know a lot...
4 Jul 20, 2007
2:25 pm

April Hooper
ahooburg79
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Karen have added you to her favorite list, check Karen's profile here http://karenacbpassion.googlepages.com/bikerchicks.htm...
1 Jun 18, 2007
2:16 am

karenpassion0414
karenpassion...
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Hi its April, I created a poll on WSSA, it is an easy one, just question re symptoms, please fill this out, and if your weaver child has more symptoms, please...
1 Jun 14, 2007
7:32 pm

April
ahooburg79
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Enter your vote today! A new poll has been created for the WSSA group: Does you Weaver child have: o Dev Delays? o Sinus Problems? o Respiratory Issues? o...
1 Jun 14, 2007
7:30 pm

WSSA@yahoogroups.com
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Hi, just wondering if there is anyone out there who we could talk with-- my baby niece (one month old) was diagnosed with Weaver's, and we don't know ANYONE...
5 Jun 10, 2007
4:28 pm

April Hooper
ahooburg79
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My sons name is SAhane and he is 5 years old now. In March he was just diagnoised with Autism I was wondering if anyonew else had a similiar diagnoises to go...
1 Jun 10, 2007
2:26 pm

ddauvenshine
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Dear Members, Please forgive my long absence. I have just deleted the spam and banned a couple of members who were posting such trash. I have authorized 2...
1 Jun 6, 2007
5:13 pm

moderator_weaversyndr...
moderator_we...
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I know that everyone is getting so frustrated with these spam postings (I sure am) there are so few of us as there is...does anyone else just want to email...
2 Jun 6, 2007
2:13 am

April Hooper
ahooburg79
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Hi, sorry 'bout the long subject line, but I've been getting junk sent to me throught this site. I wish those people would leave this site alone... Anyways,...
4 May 30, 2007
10:07 pm

April Hooper
ahooburg79
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I'm new to post, but have been reading the posts for the past few months. My daughter Maura was diagnosed with Weavers at 15 months, she is now 22 months old...
2 Feb 13, 2007
4:11 pm

g.lomom
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Happy New Year everyone. I hope this year is better for all our little ones. We have been very busy with all the holidays, so I have not been on for awhile, I...
2 Feb 4, 2007
9:58 pm

xselinaregan
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Hi everyone my name is selina and i have a 4 year old son called charlie who has weavers syndrome.We live in Ireland and we believe charlie is one of two...
4 Nov 10, 2006
4:06 pm

ralph_pot
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Hi to you all again. It has been some time since I have been able to spend a moment reading and catching up. We have just come back from a months holiday at...
4 Sep 7, 2006
1:35 am

Ralph Pot
ralph_pot
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I read with interest the posts from each of you. I've been there.... My son, Kendall, is now 26 years old and is doing so very well. He has full time work as...
1 Aug 23, 2006
4:37 pm

alenecromar
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Does anyone have experience with their children developing reflux after having a g- tube placed? It's been about 4 weeks since her g-tube was placed, and now...
4 Jul 10, 2006
6:17 pm

April Hooper
ahooburg79
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hi. My husband and I are parents of a beautiful baby girl - the youngest of three girls - who has been diagnosed with Weaver's. She is now 8 weeks old; the...
3 Jun 30, 2006
5:21 am

Mary Hearing
momofalex031505
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Hello everyone. I am so sorry I have not gotten back to you, especially you Mary! Everytime I log on here, it seems that I am having to create a new account,...
1 Jun 27, 2006
9:36 pm

ahooburg79
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Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
1 Jun 13, 2006
7:09 am

Mary Hearing
momofalex031505
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Hi everyone, its been awhile since I've been on here. So long in fact that I had to re join, due to a new computer and a poor memory. :) Devon has been doing...
2 Jun 5, 2006
6:19 pm

Mary Hearing
momofalex031505
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I am working with a child about whom it was suggested that he might have Weavers syndrome. I know nothing about it. Can anyone here direct me to the leading...
2 Mar 23, 2006
10:24 pm

mysongyes
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I've realised it was pretty silly to post my first e-mail with just "hello" in the subject. If I received an e-mail from a sender I knew nothing about...
1 Nov 14, 2005
1:48 am

Keira James
jameskeira
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Hello, Happy Mothers Day! I often tell my boyfriend (Devon's Father) that is a break for him to go to work, he gets to talk to someone besides kids and...
2 Nov 9, 2005
1:34 am

jameskeira
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Several of you all have said you've met Dr. Weaver. Where did you see him? Debi...
6 Aug 10, 2005
5:39 am

Ryan & April
hooperapril
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Hello Everyone, We have a 6 year old son who was diagnosed with Weavers Syndrome at one month of age. We are so glad to be able to connect with other families...
3 Aug 5, 2005
7:34 am

Ryan & April
hooperapril
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