Hi! I am Csilla from Hungary, my son, Lőrinc (2 years old) has Weaver syndrome, which had been diagnostised one year ago. Unfortunately we do not know a lot...
... Hello My name is Danielle (Georgia USA) My son Shane has weaver's and he is 5 years old. I would be glad to answer any questions that I can to help you...
... Csilla, I have an eight year daughter with Weaver Syndrome. She was born five and half weeks premature with a weight of 7lbs 3oz and 21 inches long. We...
HI Csilla! And welcome, I hope we (parents on this site) can help you, I know we offer great support! I have a 5 yr old son named Devon (will be 6 in October)...
My son is 3 and was diagnosed with Weavers at an early age. We've talked to doctors,teachers and therapists but it would be nice to talk to another parent....
My son is 2 1/2 and was diagnosed at 8 months. he has done pretty well over the last couple of years with all the different therapies. He still doesn't talk,...
Hi Jenny and welcome! My son is now 5, he will be 6 Oct 25. He was dx'ed just before he turned 2. He has had many complications, but early intervention has...
Its been a long time since I was last a visitor here in this lovely group! Hi to everyone.....My name is Sandy, my son Nathan was diagnosed with Weaver...
Hi Sandy!!! How are things going? It has been a long long time! Do you remember me? My son's name is Devon and he will be six October 25th. Devon is doing OK....
... April Hi...Of course I remember you! Its so encouraging to hear Devon is doing soooo well! Devon had his fair share of problems I recall and its great news...
Yes I do remember about Rebeca, how is she doing, besides scared of dogs now? Scaring on the face for a girl is horrible. How old is she? A nice setting for...
... O my goodness April it s like I'm reading all about Nathan! No really I swear its so amazing, Nathan had been under the care of a very good dentist who...
It probably will not be long until Devon's father has to stay at home with him. He is getting so big and with the aggressive behaviors....it scares me. One...
-- Hi April! Nathan is six now and he is in aged 10yr old clothes and in a size 3 shoe (correct me if Im wrong but I think our shoe sizes differ slightly from...
Hello! I have posted before but it's been a long time. My daughter Maura was diagnosed with Weaver's when she was 15 months old. She is now 2 1/2 and is 50...
Hello, I remember Maura, or hearing about her. My son, Devon, will be 6 in October. Much of what you say about walking sounds familiar. Devon held his...
Hello Kate, I am Greta and have an eight year old daughter that was diagnosed at the age of two. We have been fortunate and Abby has not had the health...
... daughter ... is ... currently ... to ... how ... of ... strings ... more ... Hi Kate, my name is Jenny and my son Earl was diagnosed at about 1yr. Luckily...
... Hi Jenny My son Nathan was diagnosed with Weavers at 18months old, started to walk around the same age, Nathan was 'out' of toddlers size nappies at around...
Sandy, I read your email and wanted to let you know that my daughter Abby (age 8, soon to be 9) has the brown birthmarks also. Her largest one is at the base...
Hi Alene, It is so good to hear from you. I am so sorry for your lose of Kevin. What a difficult thing to have to go through. I have been anxiously waiting...
Dear Greta: In answer to your questions, Kendall has, over the years, grown to be quite a self sufficient individual. He does still live at home, but has an...
Our granddaughter has been diagnost with Weavers syndrome. She is 12 years old is 6feet tall and weighs over 300lbs. She is very smart in school. She is...
... Hi Alene First I would like to acknowledge the loss of your son, Kevin.. and say something sincere, I would not pretend to have empathy as I realizes to...
... Hi Greta That's really interesting I wonder if there are any other kids with Weaver syndrome with these 'birth like marks' what would you say are your...
Hi Sandy i have just read 1 of your emails and you did give something to smile at!!! yes the dreaded school uniform. I have been allocated the full grant which...
Hi Sandy i have just read 1 of your emails and you did give something to smile at!!! yes the dreaded school uniform. I have been allocated the full grant which...
Hi Sandy, It's nice to meet you. I have been reading about Nathan and understand your frustration with the clothing. Sometimes it is the little things that...
Good to hear from you. I have heard of other children with Weaver's having dental problems, Abby has had minor problems. I am working on finding a shoe...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
