i would like to say hi and that my nephew nathan who has just turned 4 has weavers syndrome, i may not post often but i will read lots, my sister will be here...
Hi....My name is Sandy and my son Nathan, was diagnosed with WS when he was approx 18 months old, Nathan has recently turned 4, we live in Liverpool, UK. Pansy...
I want to put some of Nathan's photos in a album on your site...yet I've tried without success! The photos I've scanned are PSF and I need to convert them to...
Hello Sandy and Nathan and Welcome to the Weavery Syndrome Group that has been dedicated to you both! I am happy that you have found your way to this group :)...
Sandy, I am not familiar with PSF files. Are you on a Mac or other PC? Do you have graphic converter? If so, you can open the pic in graphic converter and...
My yahoo email won't allow me to reply to your message. I tried to send a new message to you at the other forum we go to but it won't let me attach the...
Hey Elizabeth...I actually put some photos of Nathan in the album! The first one is of me and Nathan in Manchester airport, Nathan was 3 years old at the time ...
Hello, my name is April. I am a mother of a 3 yr old with weaver syndrome. He was diagnosed about 1 1/2 trs ago now. I thought his diagnosis would explain more...
... the ... seams ... boy, ... also ... age 9, ... it ... live ... He ... assesment. ... tube ... and ... Hi April... My name is Sandy, my son Nathan was...
Each week Im going to post a 'weekly welcome and Hi to everyone' This will (hopfully) allow people to say Hello and say how their week has been etc.... So a...
Nathan, my 4yr old son, sweats so much to the point that within minutes of doing any sort of activity, his hair is dripping wet in sweat! he is not that much...
My son Nathan has Weaver syndrome, he is just turned 4 and Ive known since he was 18 months old...and since that time Ive tried to find out as much as I could...
Hi, my name is April. I am a mother of a weaver child, a boy age 3 1/2 yrs old. I have talked to Sandy (Nathan's mom), but not much feedback from any one...
My son Devon has an appt today at the Shriners Hospital for a full gait assement. I have seen a couple of sites for weaver syndrome, one for example is...
... one ... hypertension ... Devon, ... tone. ... walk ... that ... that ... worried. ... to ... am ... issues ... Dear April... I hope every think went ok...
Hi, every one. Devon had his appt yesterday at Shriners. It actually went ok! The Dr recommended splint type things for him to wear during the day, He thought...
... actually ... during ... Devons ... us ... develping ... said ... had ... tell ... and ... Hi April * I glad things went ok! at Devens appt. * About the...
Hi ....A year ago I e-mailed The Genetic and Rare Diseases information centre for info on Weaver syndrome, Here was their reply... Hello, You recently sent an...
Sorry I have not posted for a while.... I have been working in Edinburgh last week, what a beautiful city it is, it is really breath taking! Did anyone watch...
Hello, Ive just joined the group as two of my children have just been diagnosed with weaver. I have very little info so far (not had time to really look at the...
... diagnosed with weaver. ... group message etc yet) but I should be getting something from the genetics people soon (!). I have three boys, James 8yrs...
Hello, I am glad to have some new members in the group. WOW it is really rare to have two kids in the same family with weaver syndrome. From what our genetist...
Thanks for your replies, its great to know you are there and really interesting re Devon (give him an xtra snuggle from me ). James and Joe were both prem at...
... really interesting re Devon (give him an xtra snuggle from me ). ... were both really bad - I had severe pre eclampsia with both. When Joe was born in...
Hi Sandy, Joes first afternoon was great for him. When I ask him about nursery he just laughs so I guess that means he liked it lots! James is off school at...
... nursery he just laughs so I guess that means he liked it lots! James is off school at the moment so I left the windows and took James swimming which was a...
My almost two-year-old son was diagnosed with Weaver Syndrome at nine months. He has all the facial characteristics and skeletal features associated with...
I posted early in February and have read with interest the past postings. My son turned 25 last month and I remember when we were dealing with many of the...
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