I'm new to post, but have been reading the posts for the past few months. My daughter Maura was diagnosed with Weavers at 15 months, she is now 22 months old...
Happy New Year everyone. I hope this year is better for all our little ones. We have been very busy with all the holidays, so I have not been on for awhile, I...
Hi everyone my name is selina and i have a 4 year old son called charlie who has weavers syndrome.We live in Ireland and we believe charlie is one of two...
Hi to you all again. It has been some time since I have been able to spend a moment reading and catching up. We have just come back from a months holiday at...
I read with interest the posts from each of you. I've been there.... My son, Kendall, is now 26 years old and is doing so very well. He has full time work as...
Does anyone have experience with their children developing reflux after having a g- tube placed? It's been about 4 weeks since her g-tube was placed, and now...
hi. My husband and I are parents of a beautiful baby girl - the youngest of three girls - who has been diagnosed with Weaver's. She is now 8 weeks old; the...
Hello everyone. I am so sorry I have not gotten back to you, especially you Mary! Everytime I log on here, it seems that I am having to create a new account,...
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Hi everyone, its been awhile since I've been on here. So long in fact that I had to re join, due to a new computer and a poor memory. :) Devon has been doing...
I am working with a child about whom it was suggested that he might have Weavers syndrome. I know nothing about it. Can anyone here direct me to the leading...
I've realised it was pretty silly to post my first e-mail with just "hello" in the subject. If I received an e-mail from a sender I knew nothing about...
Hello, Happy Mothers Day! I often tell my boyfriend (Devon's Father) that is a break for him to go to work, he gets to talk to someone besides kids and...
Hello Everyone, We have a 6 year old son who was diagnosed with Weavers Syndrome at one month of age. We are so glad to be able to connect with other families...
Hi everyone! We, along with everyone else, have had a BUSY summer! I wanted to know if anyone has a child with scoliosis. In the literature I have read,...
My wife and I have a six year old daughter who was diagnosed at age 2 1/2 by Dr. Weaver himself in Indiana. We live in KY and I believe I have spoken with one...
Sorry I've been silent for the last few weeks....First my little girl, Rebecca 7 was attacked by a big dog in our park and ended up in Alder hey hospital with...
Hello, i am very pleased that I have find this chatbox . I am nona (28), i live in belgium. I have a son of 3 years old, who has weaver syndrome. We have a...
hello, i was overwhelmed when i read my mail today. knowing that we're not alone in seeking what the diagnosis of weaver syndrome means (and will mean in the...
Hi everyone and a big snuggle for all the weaver kids (if they let you that is!). I hope you are all ok and things are going as well as can be expected. The...
I really don't have anything to add to all of your emails, but I read each one with great interest. We are very fortunate to have a very mild case of Weavers ...
Hi....Great news about all the extra help that is available for you & Devon! I hope you get it all sorted very soon and in place, so you both can benefit from...
Hi, its me again. I have heard a couple of parents say that their child has problems eating, they choke? Devon has been tube fed from 1 year old untill just...
Hello every one. Today we had Devons last appiontment with Dr. Mark Derby. He is at Gonzaga University, and runs a behavioral clinic. I am a little overwhelmed...
Dear all Thank you for all your messages of support.. its hard to respond to them all individually so i am sending this all round message instead! I too have...
Hi, how is every one doing? We are doing good. I actually have some good news from Devons speech theripist. Last Friday for the first time ever, Devon has a...
Hi everyone, I am the mother of a beautiful 21 month daughter called Emma Rebecca who is currently undergoing a series of test to determine her condition which...
Hi my son is 3 yrs old and he was diagnoised @ 14 mths. He iis 3 1/2 ft tall(same size as my 6 yr old son). He has alot of delayed and has alot of health...
Hi and welcome to our support site....Its lovely to have another new member, hopefully you will find our site informative and a place were you can ask any of...
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