Well, I'm sure you realise that I am a new member to this group - as obviously you wouldn't have come across my name before. I am a mother of a 19 month old...
I've realised it was pretty silly to post my first e-mail with just "hello" in the subject. If I received an e-mail from a sender I knew nothing about...
I am working with a child about whom it was suggested that he might have Weavers syndrome. I know nothing about it. Can anyone here direct me to the leading...
... Hi, I can't answer your question, but wanted to throw in another possibility. Could it be that the child has Sotos-Like syndrome? The manifestations are...
Hi everyone, its been awhile since I've been on here. So long in fact that I had to re join, due to a new computer and a poor memory. :) Devon has been doing...
Hi, April, my name is Mary and I have a son, Alex, who is 14 months that has recently been diagnosed with Weaver syndrome. I am so happy to see someone else...
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Hi, just wondering if there is anyone out there who we could talk with-- my baby niece (one month old) was diagnosed with Weaver's, and we don't know ANYONE...
I don't know if you got my previous reply, but I will send another one. My son was given a firm diagnosis of weaver syndrome last month after about 6 months...
Hello everyone. I am so sorry I have not gotten back to you, especially you Mary! Everytime I log on here, it seems that I am having to create a new account,...
hi. My husband and I are parents of a beautiful baby girl - the youngest of three girls - who has been diagnosed with Weaver's. She is now 8 weeks old; the...
Hello Sara, my name is April and I have a four and a half year old boy with weavers. You are not alone, trust me. Weaver Syndrome usually affects boys, I have...
Hi, my name is Mary, and my son, Alex, is 15 months old. he was given a firm diagnosis of Weaver syndrome a couple of months ago. He was born in respiratory...
Does anyone have experience with their children developing reflux after having a g- tube placed? It's been about 4 weeks since her g-tube was placed, and now...
Alex has never had a g-tube, but he was put on Zantac for reflux several months ago. It has been very helpful, and we expect to ween him from it in a few...
Hi there, yes yes yes!!! As I have said before, I think once Dr Weaver does more research on all the new cases, he will find that there are several other side...
Hi there, yes yes yes!!! As I have said before, I think once Dr Weaver does more research on all the new cases, he will find that there are several other side...
... to ... from ... having ... Our ... walk.. ... other ... GROUP IN THE LAST COUPLE OF DAYS. HOW IS EMMA NOW? SO MUCH OF WHAT SAID IS A COMPLETE REPLICA OF...
My son, Alex, started walking at 15 1/2 months. we did lots of therapy for him, though. He also hated to walk on carpet. I think it was not stable enough...
I read with interest the posts from each of you. I've been there.... My son, Kendall, is now 26 years old and is doing so very well. He has full time work as...
This message was initially a reply to Dora (Emma's mum). I was excited to see a mom of a Weaver's girl. I've been corresponding with Dr. Weaver over email, ...
Hi everyone my name is selina and i have a 4 year old son called charlie who has weavers syndrome.We live in Ireland and we believe charlie is one of two...
I almost missed your post because there are so few posts on this site! My son, alex, is 19 months old and was "diagnosed" at about 15 months. he seems to...
Hello to all! We are in Canada (Niagara Falls area) with our daughter Rachel - another Weaver baby. She is now 6 months, and we would love to correspond...
I'm new to post, but have been reading the posts for the past few months. My daughter Maura was diagnosed with Weavers at 15 months, she is now 22 months old...
Happy New Year everyone. I hope this year is better for all our little ones. We have been very busy with all the holidays, so I have not been on for awhile, I...
I have been reading your posts for a while now but have never posted myself. My husband and I have a daughter diagnosed with Weaver syndrome at the age of...
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