Hi April, Just a quick one to say good luck for the op and give Devon a kiss from us. He sounds like such a brave boy xxxxx Michelle ... From: Ryan & April ...
Hi everyone, Hi sorry I have not posted for a while, the kids are off school this week and so things are a bit hectic. I have just received the speech...
How is everyone? We've all been quiet recently, Nathan a little difficult at the moment, He has got it in his head that we are all going on holiday (we have...
Hi Sandy, we are doing OK. We have been very busy ourselves. Devon had sinus surgery on the 27th of May. That did not go as expected. It was only suppost to be...
Sorry I've been silent for the last few weeks....First my little girl, Rebecca 7 was attacked by a big dog in our park and ended up in Alder hey hospital with...
Oh my god Sandy! You all must have been to hell and back. Give my love to your daughter a big hug from us (and one for you all for coping with it all). XXX ...
Hi Sandy, WOW! Sorry to hear about your daughter. I have found that emotional scares are tougher to deal with. Was it a big dog? We have laws in our parks that...
Hello Everyone, We have a 6 year old son who was diagnosed with Weavers Syndrome at one month of age. We are so glad to be able to connect with other families...
... Hi, My name is Charlyn Barrett and I just joined this group today. We live near Toledo, OH and my son Beaux is 6 yrs. old with Weavers Syndrome. I would...
Hello my son is only three and he is enrolled in a preschool for special needs children through our school system he went a few weeks last year and is going...
Hi everyone! We, along with everyone else, have had a BUSY summer! I wanted to know if anyone has a child with scoliosis. In the literature I have read,...
Devon has not seen Dr. Weaver. But I was told by his geneticist that he holds clinic in Indianapolis, Indiana, USA Are you thinking of going? If you look up...
Hi! It is great hearing from you!! How did the trip to the DR go? Is it really worth the trip? Devon does not do well in cars for long periods of time. I might...
That is where he has a clinic it is normal on fridays but he saw us on tuesday bescause we are from out of town. This is his number to the clinic 317-274-1057...
it did not take long he fit me in around my schedule really i told him when i was coming that way because we went for something else also and he worked us in...
I think I have talked with you before, I have a almost 4 year old with weaver syndrome. His name is Devon. Devon was diagnosed by DR J Martin, and confirmed by...
Hi to you all again. It has been some time since I have been able to spend a moment reading and catching up. We have just come back from a months holiday at...
Well, I'm sure you realise that I am a new member to this group - as obviously you wouldn't have come across my name before. I am a mother of a 19 month old...
I've realised it was pretty silly to post my first e-mail with just "hello" in the subject. If I received an e-mail from a sender I knew nothing about...
I am working with a child about whom it was suggested that he might have Weavers syndrome. I know nothing about it. Can anyone here direct me to the leading...
... Hi, I can't answer your question, but wanted to throw in another possibility. Could it be that the child has Sotos-Like syndrome? The manifestations are...
Hi everyone, its been awhile since I've been on here. So long in fact that I had to re join, due to a new computer and a poor memory. :) Devon has been doing...
Hi, April, my name is Mary and I have a son, Alex, who is 14 months that has recently been diagnosed with Weaver syndrome. I am so happy to see someone else...
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Hi, just wondering if there is anyone out there who we could talk with-- my baby niece (one month old) was diagnosed with Weaver's, and we don't know ANYONE...
I don't know if you got my previous reply, but I will send another one. My son was given a firm diagnosis of weaver syndrome last month after about 6 months...
Hello everyone. I am so sorry I have not gotten back to you, especially you Mary! Everytime I log on here, it seems that I am having to create a new account,...
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