This support group is dedicated to my friend, Sandy, and her son, Nathan, who has been diagnosed with Weaver Syndrome. Welcome to all who find their way here...
Welcome Patty! I can not tell you how thrilled I am that you found your way here and joined the site! I am hoping Sandy will make it here soon. Please be...
Jeff was diagnosed w/Weaver at age 9 months after many tests with the genetisist. He has many of the characteristics of Weaver Syndrome, long fingers, big...
I have just realized who you are :) Thank you, again, for coming here and participating as a member. I have a couple of questions for you. Have you ever met...
I'm pleased to join this group. I have had two sons diagnosed with Weavers. Kendall is almost 25 and doing some wonderful things. He's employed; loves to...
There have been conferences for Soto & Weaver Syndrome, sponsored by Soto Syndrome group, yet I have not attened one. Many years ago I spoke to Dr Weaver's...
My wife and I have a six year old daughter who was diagnosed at age 2 1/2 by Dr. Weaver himself in Indiana. We live in KY and I believe I have spoken with one...
Glad to join all of you. I have a 3-year-old great grandson who was diagnosed with WS at birth. His mother had him evaluated the first two years, but has...
Hi Patty, I am in Northern California. I have been a member of the Soto Syndrome Support Association for 5 years as they welcome families of persons with all...
I would like to welcome you, your wife and your daughter to the group! Thank you for joining us and for your offer to help in any way you can. Someday, I...
Hi Fran and Welcome to the group! I have a feeling your granddaughter will not be able to ignore her son's diagnosis for too much longer. In fact, as he...
I have placed a photo of my son, Aaron, in the "Photos" section of this site. Although he doesn't have Weaver Syndrome, I thought it might encourage our...
i would like to say hi and that my nephew nathan who has just turned 4 has weavers syndrome, i may not post often but i will read lots, my sister will be here...
Hi....My name is Sandy and my son Nathan, was diagnosed with WS when he was approx 18 months old, Nathan has recently turned 4, we live in Liverpool, UK. Pansy...
I want to put some of Nathan's photos in a album on your site...yet I've tried without success! The photos I've scanned are PSF and I need to convert them to...
Hello Sandy and Nathan and Welcome to the Weavery Syndrome Group that has been dedicated to you both! I am happy that you have found your way to this group :)...
Sandy, I am not familiar with PSF files. Are you on a Mac or other PC? Do you have graphic converter? If so, you can open the pic in graphic converter and...
My yahoo email won't allow me to reply to your message. I tried to send a new message to you at the other forum we go to but it won't let me attach the...
Hey Elizabeth...I actually put some photos of Nathan in the album! The first one is of me and Nathan in Manchester airport, Nathan was 3 years old at the time ...
Hello, my name is April. I am a mother of a 3 yr old with weaver syndrome. He was diagnosed about 1 1/2 trs ago now. I thought his diagnosis would explain more...
... the ... seams ... boy, ... also ... age 9, ... it ... live ... He ... assesment. ... tube ... and ... Hi April... My name is Sandy, my son Nathan was...
Each week Im going to post a 'weekly welcome and Hi to everyone' This will (hopfully) allow people to say Hello and say how their week has been etc.... So a...
Nathan, my 4yr old son, sweats so much to the point that within minutes of doing any sort of activity, his hair is dripping wet in sweat! he is not that much...
My son Nathan has Weaver syndrome, he is just turned 4 and Ive known since he was 18 months old...and since that time Ive tried to find out as much as I could...
Hi, my name is April. I am a mother of a weaver child, a boy age 3 1/2 yrs old. I have talked to Sandy (Nathan's mom), but not much feedback from any one...
My son Devon has an appt today at the Shriners Hospital for a full gait assement. I have seen a couple of sites for weaver syndrome, one for example is...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
