Hi all,
Just an update and a note re mobility - hope everyone's doing ok.
We are having a dodgy week! Joes starting to loose his temper and throw things at my head (and he's a good shot!) he is also making his body rigid and accidentally bangs his head (this has happened about four times today alone). I hope its just a phase but remembering how James was at this age I don't know. Its really hard because you need to discipline them for being naughty and to let them know that what they are doing is not acceptable but you also realise that its probably part of their condition and they cant help it. Tough one - especially when Jack and Joe are so close in age and Jack wonders why Joe can get away with things he cant..
Joe is also being seen by the education department so that everything's in place (?) for when he starts school - that's a bit of a joke in this house as we are still trying to get James sorted out three years down the line! Joe also starts ST soon and I am going to find out about any sensory therapy available here. Joes still waking up coughing/choking about four times a night and then James is wide awake at five (do your children have weird sleep patterns?).
We found out today that Jack has got a hernia in his groin so he needs an op - he also has hammer toes but does not have weavers - I wonder if its just a fluke or if he 'carries' some of the gene problems ?- I guess we will never know.!!
It could be worse - I could be going grey. OH, I AM. Ha Ha
XX
Michelle