--- In WSSA@yahoogroups.com, "littledebif" <littledebif@y...> wrote:
> Does anyone have a child who is in a wheelchair? Right now, it
looks
> as if Brandon will be in one. We are working on standing and gait
> training, but he is making very little progress. He is so heavy
to
> transport from the carseat to stroller, we are actually going to
start
> using one now. Even though he is not quite two, he is 30 plus
pounds,
> and 36 inches. I am only 4'11", and weigh less than 100 lbs. My
> insurance company won't pay for a wheelchair until he is three. We
> have found a program that will lend us a wheelchair. Our
therapists
> hope he will be able to use a power chair. I'd love to hear what
> accommodations others have made to their homes to help make life a
> little easier. We are in the process of remodeling our home, and
are
> trying to make it as "Brandon friendly" as possible.


Hello Littledebif!

I dont know or have heard of any child to use a wheel chair,
however, this is the only support site for weaver syndrome and it is
in its infancy, and there is only a handful of us who are active
here, given the fact weavers is such a rare disorder! Thats not to
say there are'nt any kids in chairs.What does seem apparent is that
everyone I've talked to, their kids seem to have some sort of
mobility issues including my own son, Nathan.Please read some of the
posts as this subject is discused

with kind regards....Sandy x