Hi Sandy. I have researched this and talked to my sons geneticist, dev. pediatrician, and psychologist about this subject specifically. His geneticists says yes, several of the kids diagnosed with weaver syndrome are on the autism spectrum. Devon was diagnosed with autism at 11 months of age. Since then early intervention has done wonders, the psychologist has "lifted" the diagnoses to PDD-NOS (still on the autism spectrum; there are five disorders in the spectrum of autism, aspergers being another) this last summer after my questioning the diagnosis. To be autistic children must meet certain criteria, eye contact and socialization are key factors. Most kids with weaver syndrome have PDD-NOS (pervasive developmental disorder - not otherwise specified), and some more autistic like than others. Aspergers is a high
functioning autism, this diagnosis can help with schools and more services, but I found it hampered the way doctors communicated with him. Devon has always been very social...not very good at socializing, but still has the want.
I also belong to the soto's syndrome group, a sister diagnosis to weaver's (facial features being the main difference in these two syndromes!), and I have noticed many of those kids also have an autistic, autistic like, aspergers diagnosis and/or PDD-NOS.
Hope this helps!
Glad to hear from you! Give some extra hugs to Nathan :) April
--- On Thu, 5/21/09, Sandy <znandra40@...> wrote:
From: Sandy <znandra40@...> Subject: [WSSA] Would anyone like to answer my question? To: WSSA@yahoogroups.com Date: Thursday, May 21, 2009, 3:25
PM
This a question to each and all.....
Recently Nathan was diagnosed with Asparagus, which got me wondering, how many of our kids with Weaver Syndrome, exhibit or show signs of Autistic characteristics/ trait's within their behaviour
Also just how many have an actual diagnoses? because this just maybe significant to Weaver Syndrome itself....There doesn't seem to be that much research going on, I realize the 'few' affected by this disorder does not warrant research or should I say warrants money to finance research! Maybe we should do our own?
Hi sandy - the boys heads were measured two weeks ago, I cant remember the exact measurements but James' was about 4cms larger than mine and joes was way above...
Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at...
Hi April... Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak...
Hi Sandy... I am so sorry to hear of the difficult time you are having. Hang in there, it will get better. First of all you should find out what services...
Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually...
Hi April I read the link you are right some very interesting facts! there was so many I could relate too and apply to Nathan and his behaviour I don't know...
No problem Sandy, glad I could help! This is what this support group is here for. Greta mentioned that many of the kids with weavers also have autistic...
Hi April you know I don't really know? Nathans brothers Jonathan 23 and Jamie 18 when they hit puberty they just seemed to sailed through it apart from the...
Hi Sandy. I have researched this and talked to my sons geneticist, dev. pediatrician, and psychologist about this subject specifically. His geneticists says...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Offline 
Send Email