Hello Danielle its nice to meet you....

I read your reply and your words made me cry and I don't cry often! but I can
just tell that you know what your talking about and that your own experiences
has taken you down a road no one expects to travel down! And you are so
right....

I have to meet this head on, and find the right organisation that will benefits
Nathan and that will help and educate us because we do need it. I have 5
children from 23 down and I know the parameters of 'normal' are huge but this is
so different its hard to define but I always knew Nathan's behaviour was up and
above what we all consider 'normal' but we just plodded along busy dealing with
all his other problems like his seizure, getting the right boots to support his
ankles etc and so on.

we looked upon his behaviour as little odd even funny at times and its amazing
how quickly a parent can get accustomed to this behaviour. I actually listed on
paper the differences in Nathans behaviour and I was staggered

Here in Liverpool we have a rather distinctive sounding accent as do all my
kids...but Nathan does not have any accent at all! he users a lot of American
words in replace of English words (maybe because of TV) words like garbage
instead of rubbish etc He switches off He was very late talking 3years old when
he 1st started talking. He would and still does line all his toys up. He
develops obsession over different things He is scared of what we consider
'normal sounds' like the hover motorbikes the list is endless!

You also made possibly the most important point of all that all these behaviour
issues we share with our children we should try and get a diagnosis for because
they have Weaver Syndrome! and its the only way of getting a true picture of
what Weaver syndrome really is and what a parent with a newly diagnosed child
can look out for to prepare themselves for their possible future could hold
because when reading anything on Weaver syndrome the behaviour characteristics
are barely mention, if at all. that really needs to be change

Thank you Danielle you will never know just how much you have helped me today
its quite clear to me why God may of chosen you to be the mother of a child with
Weaver's...because you can reach people...Thank you

Sandy xxx






--- In WSSA@yahoogroups.com, "ddauvenshine" <ddauvenshine@...> wrote:
>
> --- In WSSA@yahoogroups.com, "Sandy" <znandra40@> wrote:
> >
> > I couple of weeks ago we received a phone call from Nathans school reporting
to us that something serious had happened in school involving Nathan! As you
can imagine we rushed to the school were we were told had `attacked a little
girl in his class! I was filled with horror at the mere thought of it, luckily
the little girl wasn't hurt thank god, but she was upset and crying! so we took
him home there and then…after sitting him down and taking to him it turns out
that he attacked her because she was just sitting in his `chair'…no one at that
point had realized that he had focused so much on his chair (Nathan has many
autistic traits)
> >
> > The following day we had a meeting with his teacher and the special needs
teacher etc they reported that even if they move anything around in his class
room it upsets and unsettles him for a few days. To cut a long story short the
school is pushing us to get some sort of diagnosis for autism or aspersers in
relation to Nathans behaviour .
> >
> > A week later we had an appointment with community paediatrician and she gave
us 2 phone numbers to ring even though people who get these numbers usually have
a diagnosis (autistic nurse who can put us in touch with various services that
can help with this behaviour) now Iv had these numbers for 2 days and I still
haven't rang them yet… why? probably because I am frightened of being rejected
because Nathan hasn't a diagnosis for autism they may not help us and if they
don't…well I just don't know what we will do? ….I'm in such a confused state I
didn't know how to react I didn't know what to say to Nathan I even didn't know
how to punish him as he does not fully understand what he actually did! I think
I need help and some advise…if it was you what would you do in this situation?
> >
> > Sandy xxx
> >
> Hello I am the mother of Shane I don't post very much but I felt the urge to
do so this time. See my Shane has autism also (Aspergers to be exact) and he
has some of the same issues also. But by getting a true dx it has helped
because we have ABA tutoring ans such and the teachers know what to expect of
him. I know it is hard to deal with I went through all the same emotions. I
asked God why did he have to add one more thing to my sons plate. See Shane as
about 10 diffrent diagnosis any where from Weaver's to asthma to low IQ, but
then I realized the reason was God had plans for him. Anyways what I am trying
to say is get a diagnosis of Autism or PDD and jsut do like we did for Weavers,
research, hit it head on and see if your area has a Walk for Autism group or any
kind of support group (some groups will let you join even before you get a
diagnosis). You may also want to talk to his teachers and make an area in his
class that does belong to him and ask them if the are going to rearrange things
give him warning(like a day or a few hours beforehand) so he can adjust. We
have to do that even for Dr. appt and such. It is true they do not adjust well.
> Hope it helps
> Danielle Auvenshine Georgia USA)
> mother of Shane
>