Search the web
Sign In
New User? Sign Up
WSSA · Weaver Syndrome Support Association
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Hear how Yahoo! Groups has changed the lives of others. Take me there.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Sandy   Message List  
Reply | Forward Message #456 of 481 |
Re: [WSSA] Re: Sandy

No problem Sandy, glad I could help! This is what this support group is here for. Greta mentioned that many of the kids with weavers also have autistic features, kids can have the autistic features (tendencies) and not be autistic, they can be "autistic like." They will perform some tests and ask you questions, I am happy you have called, sometimes its th first step that is so scary.
Devon will be 8 in October, so would be in 2. Kids have to be 5 before kindergarten starts, then they go to 1st, 2nd, and so on till they pass a tests in 12th grade. This is new, I never had to pass a test to graduate. The kids are usually 18 or 19 years old by then. They can then join the service, go to work or college. This is so interesting for me, thanks for sharing!
Has Nathan shown any signs of starting puberty? Devon did/was last summer, he was only 6! It has since stopped completely, all pubic hair fell out and everything! His bone age advanced by three years during his early puberty!! Anyways, just thought I would ask. Talk to you later!
April Hooper
--- On Mon, 3/23/09, Sandy <znandra40@...> wrote:

From: Sandy <znandra40@...>
Subject: [WSSA] Re: Sandy
To: WSSA@yahoogroups.com
Date: Monday, March 23, 2009, 5:21 AM

Hi April

I read the link you are right some very interesting facts! there was so many I could relate too and apply to Nathan and his behaviour I don't know whether to feel relieved or sad I suppose I feel a bit of both (I do have a tendency to bury my head) anyway I rang the NSD Nurse and I was told that she is on annual leave this week but she will ring me next week to arrange a home visit which is great because although I don't really know what type of help we need I do realize we need some sort of help...thanks for the support and encouragement April!

Getting back to the school thing lol…. If Devon is 7 I suppose he would be in the same year as Nathan year 3 only if Devon is turning 8 before of September this year if not he would be in year 2

Our kids start Nursery part time at 3 then at 4 they enter reception class full time (8:45 - 15:00) then year 1 2 3 etc until year 7 when they enter secondary/high school until year 11 (age 16) when they have the option to leave school or stay on another year. If they choose to leave they then can either start work or go to college or university (only if they are clever enough can they attend university)

Anyway April Il keep you updated on how we get on Thanks again for all your help… take care

Sandy xx

--- In WSSA@yahoogroups. com, April Hooper <ahooburg79@ ...> wrote:
>
> No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually relate!Yes the journal can be very helpful! It should state what was going on right before the behavior, during and after, along with duration and consequences. This way if there are any patterns or repetitive issues, I can see it and help get it fixed.
> Autism is so fascinating to me. http://www.nimh. nih.gov/health/ publications/ autism/nimhautis mspectrum. pdf
> this link should help answer some of your questions. There are five diagnosis that make up ASD (Autism Spectrum Disorders); autism, asperger syndrome, rett syndrome, pervasive developmental delay and
> childhood disintegrative disorder . This link has a description of them all. If you have any more questions, ask!
> LOL, I have no idea how to interpret your grades either...Devon is 7. He started pre-school at 3.
> Do you have special education, or is he normal functioning besides behavior? I guess I am asking, what are his other delays besides behavior?
> Talk with you soon!
>
> --- On Sat, 3/21/09, Sandy <znandra40@. ..> wrote:
>
>
> From: Sandy <znandra40@. ..>
> Subject: [WSSA] Re: Sandy
> To: WSSA@yahoogroups. com
> Date: Saturday, March 21, 2009, 6:09 PM
>
>
>
>
>
>
>
> Hi April...
>
> Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak of sounds similar to the Journal we now part take in between the teachers and ourselves of everything Nathan does at school and at home, which has helped a lot!
>
> You mentioned five disorders of the autistic spectrum? I don't know anything about autism a part from the obvious traits that everyone knows about, you will have to tell me more about that April please when you have time x
>
> I don't know what grade means April sorry lol but I can tell you Nathan is now in year 3 (the year he makes his 1st Holy Communion)he has 3 more years in primary school than at 11 yrs he will then go to secondary/high school
>
> Nathan did have extra support (a lady used to watch him at play/lunch times) up until last year when the school claimed that they thought he didn't need it any more which Paul and I disagreed with at the time but the community paediatrician said she would like Nathan to have this support re established plus within the class room also which I think can only benefit Nathan teachers and all other kids in his class
>
> Thanks again April for your supporting words it helps so much I will keep you updated
>
> Blessings to you and your family
>
> Sandy xxx
>
> --- In WSSA@yahoogroups. com, April Hooper <ahooburg79@ ...> wrote:
> >
> > Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at school, called a FBA...if you would like more information, ask... Anyways about the autistic diagnosis... schools get more help and can have different guide lines if there is an autistic diagnosis. Although they will get the same supports if the diagnosis is one of the autism spectrum disorders (five disorders). Devon falls under the PDD-NOS (one of the autism spectrum disorders) and health impaired category for special education qualification.
> > Is Nathan being mainstreamed (in an inclusive setting)? What grade? Does he have a support aid all day, or does he need one?
> > Sorry, I guess I am asking more questions than helping...
> > Devon is in first grade, and this is his fifth year of public school (three years pre-k, then K). Hope to hear from you soon!
> > April
> >  
> >  
> >
> > --- On Sat, 3/21/09, Sandy <znandra40@ ..> wrote:
> >
> >
> > From: Sandy <znandra40@ ..>
> > Subject: [WSSA] What should we do???
> > To: WSSA@yahoogroups. com
> > Date: Saturday, March 21, 2009, 10:20 AM
> >
> >
> >
> >
> >
> >
> > I couple of weeks ago we received a phone call from Nathans school reporting to us that something serious had happened in school involving Nathan! As you can imagine we rushed to the school were we were told had `attacked a little girl in his class! I was filled with horror at the mere thought of it, luckily the little girl wasn't hurt thank god, but she was upset and crying! so we took him home there and then…after sitting him down and taking to him it turns out that he attacked her because she was just sitting in his `chair'…no one at that point had realized that he had focused so much on his chair (Nathan has many autistic traits)
> >
> > The following day we had a meeting with his teacher and the special needs teacher etc they reported that even if they move anything around in his class room it upsets and unsettles him for a few days. To cut a long story short the school is pushing us to get some sort of diagnosis for autism or aspersers in relation to Nathans behaviour .
> >
> > A week later we had an appointment with community paediatrician and she gave us 2 phone numbers to ring even though people who get these numbers usually have a diagnosis (autistic nurse who can put us in touch with various services that can help with this behaviour) now Iv had these numbers for 2 days and I still haven't rang them yet… why? probably because I am frightened of being rejected because Nathan hasn't a diagnosis for autism they may not help us and if they don't…well I just don't know what we will do? ….I'm in such a confused state I didn't know how to react I didn't know what to say to Nathan I even didn't know how to punish him as he does not fully understand what he actually did! I think I need help and some advise…if it was you what would you do in this situation?
> >
> > Sandy xxx
> >
>




Mon Mar 23, 2009 1:55 pm

ahooburg79
Online Now Online Now
Send Email Send Email

Forward
Message #456 of 481 |
Expand Messages Author Sort by Date

Hi sandy - the boys heads were measured two weeks ago, I cant remember the exact measurements but James' was about 4cms larger than mine and joes was way above...
huggetts
michellehuggett
Offline Send Email
May 4, 2005
2:46 pm

Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at...
April Hooper
ahooburg79
Online Now Send Email
Mar 21, 2009
10:53 pm

Hi April... Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak...
Sandy
znandra40
Offline Send Email
Mar 22, 2009
1:09 am

Hi Sandy... I am so sorry to hear of the difficult time you are having. Hang in there, it will get better. First of all you should find out what services...
Greta
g.lomom
Offline Send Email
Mar 22, 2009
4:21 am

Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Sandy
znandra40
Offline Send Email
Mar 23, 2009
2:22 pm

Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Sandy
znandra40
Offline Send Email
Mar 23, 2009
2:52 pm

No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually...
April Hooper
ahooburg79
Online Now Send Email
Mar 22, 2009
2:16 am

Hi April I read the link you are right some very interesting facts! there was so many I could relate too and apply to Nathan and his behaviour I don't know...
Sandy
znandra40
Offline Send Email
Mar 23, 2009
12:21 pm

No problem Sandy, glad I could help! This is what this support group is here for. Greta mentioned that many of the kids with weavers also have autistic...
April Hooper
ahooburg79
Online Now Send Email
Mar 23, 2009
2:09 pm

Hi April you know I don't really know? Nathans brothers Jonathan 23 and Jamie 18 when they hit puberty they just seemed to sailed through it apart from the...
Sandy
znandra40
Offline Send Email
Mar 23, 2009
2:46 pm

Hi Sandy. I have researched this and talked to my sons geneticist, dev. pediatrician, and psychologist about this subject specifically. His geneticists says...
April Hooper
ahooburg79
Online Now Send Email
May 22, 2009
2:16 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help