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WSSA · Weaver Syndrome Support Association
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Sandy   Message List  
Reply | Forward Message #453 of 481 |
Re: [WSSA] Re: Sandy

No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually relate!Yes the journal can be very helpful! It should state what was going on right before the behavior, during and after, along with duration and consequences. This way if there are any patterns or repetitive issues, I can see it and help get it fixed.
Autism is so fascinating to me.
http://www.nimh.nih.gov/health/publications/autism/nimhautismspectrum.pdf
this link should help answer some of your questions. There are five diagnosis that make up ASD (Autism Spectrum Disorders); autism, asperger syndrome, rett syndrome, pervasive developmental delay and
childhood disintegrative disorder . This link has a description of them all. If you have any more questions, ask!
LOL, I have no idea how to interpret your grades either...Devon is 7. He started pre-school at 3.
Do you have special education, or is he normal functioning besides behavior? I guess I am asking, what are his other delays besides behavior?
Talk with you soon!

--- On Sat, 3/21/09, Sandy <znandra40@...> wrote:

From: Sandy <znandra40@...>
Subject: [WSSA] Re: Sandy
To: WSSA@yahoogroups.com
Date: Saturday, March 21, 2009, 6:09 PM


Hi April...

Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak of sounds similar to the Journal we now part take in between the teachers and ourselves of everything Nathan does at school and at home, which has helped a lot!

You mentioned five disorders of the autistic spectrum? I don't know anything about autism a part from the obvious traits that everyone knows about, you will have to tell me more about that April please when you have time x

I don't know what grade means April sorry lol but I can tell you Nathan is now in year 3 (the year he makes his 1st Holy Communion)he has 3 more years in primary school than at 11 yrs he will then go to secondary/high school

Nathan did have extra support (a lady used to watch him at play/lunch times) up until last year when the school claimed that they thought he didn't need it any more which Paul and I disagreed with at the time but the community paediatrician said she would like Nathan to have this support re established plus within the class room also which I think can only benefit Nathan teachers and all other kids in his class

Thanks again April for your supporting words it helps so much I will keep you updated

Blessings to you and your family

Sandy xxx

--- In WSSA@yahoogroups. com, April Hooper <ahooburg79@ ...> wrote:
>
> Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at school, called a FBA...if you would like more information, ask... Anyways about the autistic diagnosis... schools get more help and can have different guide lines if there is an autistic diagnosis. Although they will get the same supports if the diagnosis is one of the autism spectrum disorders (five disorders). Devon falls under the PDD-NOS (one of the autism spectrum disorders) and health impaired category for special education qualification.
> Is Nathan being mainstreamed (in an inclusive setting)? What grade? Does he have a support aid all day, or does he need one?
> Sorry, I guess I am asking more questions than helping...
> Devon is in first grade, and this is his fifth year of public school (three years pre-k, then K). Hope to hear from you soon!
> April
>  
>  
>
> --- On Sat, 3/21/09, Sandy <znandra40@. ..> wrote:
>
>
> From: Sandy <znandra40@. ..>
> Subject: [WSSA] What should we do???
> To: WSSA@yahoogroups. com
> Date: Saturday, March 21, 2009, 10:20 AM
>
>
>
>
>
>
> I couple of weeks ago we received a phone call from Nathans school reporting to us that something serious had happened in school involving Nathan! As you can imagine we rushed to the school were we were told had `attacked a little girl in his class! I was filled with horror at the mere thought of it, luckily the little girl wasn't hurt thank god, but she was upset and crying! so we took him home there and then…after sitting him down and taking to him it turns out that he attacked her because she was just sitting in his `chair'…no one at that point had realized that he had focused so much on his chair (Nathan has many autistic traits)
>
> The following day we had a meeting with his teacher and the special needs teacher etc they reported that even if they move anything around in his class room it upsets and unsettles him for a few days. To cut a long story short the school is pushing us to get some sort of diagnosis for autism or aspersers in relation to Nathans behaviour .
>
> A week later we had an appointment with community paediatrician and she gave us 2 phone numbers to ring even though people who get these numbers usually have a diagnosis (autistic nurse who can put us in touch with various services that can help with this behaviour) now Iv had these numbers for 2 days and I still haven't rang them yet… why? probably because I am frightened of being rejected because Nathan hasn't a diagnosis for autism they may not help us and if they don't…well I just don't know what we will do? ….I'm in such a confused state I didn't know how to react I didn't know what to say to Nathan I even didn't know how to punish him as he does not fully understand what he actually did! I think I need help and some advise…if it was you what would you do in this situation?
>
> Sandy xxx
>




Sun Mar 22, 2009 2:16 am

ahooburg79
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Message #453 of 481 |
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Hi sandy - the boys heads were measured two weeks ago, I cant remember the exact measurements but James' was about 4cms larger than mine and joes was way above...
huggetts
michellehuggett
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May 4, 2005
2:46 pm

Hey Sandy! Sorry things are going a little rough right now. I have been there so many times with Devon it is not funny. We keep a daily log of his behavior at...
April Hooper
ahooburg79
Online Now Send Email
Mar 21, 2009
10:53 pm

Hi April... Thank you for your response to my email you always talk so much sense and I appreciate your questions as they are so relevant...The FBA you speak...
Sandy
znandra40
Offline Send Email
Mar 22, 2009
1:09 am

Hi Sandy... I am so sorry to hear of the difficult time you are having. Hang in there, it will get better. First of all you should find out what services...
Greta
g.lomom
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Mar 22, 2009
4:21 am

Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Sandy
znandra40
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Mar 23, 2009
2:22 pm

Hi Greta Thanks for your reply it was very informative especially how you described how things work where you live and how your country approaches things and...
Sandy
znandra40
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Mar 23, 2009
2:52 pm

No problem Sandy. I'm glad I could help, anytime! We all have days like this. It is nice to have parents to talk to about it, especially ones that can actually...
April Hooper
ahooburg79
Online Now Send Email
Mar 22, 2009
2:16 am

Hi April I read the link you are right some very interesting facts! there was so many I could relate too and apply to Nathan and his behaviour I don't know...
Sandy
znandra40
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Mar 23, 2009
12:21 pm

No problem Sandy, glad I could help! This is what this support group is here for. Greta mentioned that many of the kids with weavers also have autistic...
April Hooper
ahooburg79
Online Now Send Email
Mar 23, 2009
2:09 pm

Hi April you know I don't really know? Nathans brothers Jonathan 23 and Jamie 18 when they hit puberty they just seemed to sailed through it apart from the...
Sandy
znandra40
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Mar 23, 2009
2:46 pm

Hi Sandy. I have researched this and talked to my sons geneticist, dev. pediatrician, and psychologist about this subject specifically. His geneticists says...
April Hooper
ahooburg79
Online Now Send Email
May 22, 2009
2:16 am
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