Hello everyone, hope all is well for you and your families! I wanted to
introduce our newest member, Magda from Poland. She is the godparent of a
recently diagnosed child named Kuba. The parents do not speak English (names are
Kasia & Tomek),therefore, the godmother is trying to get information for/to
them. She has asked to become a member and share in our experiences. Like most
of us at that time, the newly diagnosed family is wanting to know all they can
on this syndrome.
So welcome Magda! Please ask anything you wish, I am sure one of the great and
knowledgable mothers/family members on here can help you!
April
Mother to Devon, now 7!!