Hi Greta....

Sorry it took me a while to reply we went to stay in a log cabin in
the welsh mountains ..a much needed break

wow I know what you mean about having to laugh at the irony of it all
I must of admit I have had to learn to laugh about it all regarding
Nathan's size when he was younger it was such an ordeal just to go
shopping for his clothes, which was every six weeks or so Paul always
did it lol

There is something that I have always wondered about ... each time
Nathan gets a cold he will loose his voice up to 3 weeks at a time
and I wondered if any other mums have noticed this or it has anything
to do with their 'low pitched cry' as infants? its something I have
always been curious about

anyway good luck with Dr Weaver please lets' know how you get
on ...until then take care

Sandy xx





--- In WSSA@yahoogroups.com, Greta Holmes <g.lomom@...> wrote:
>
> Sandy,
>
> I love the new pictures you posted of Nathan. He is taller than
his sister. Abby is now taller than me. I have to make her sit so I
can brush her hair, and she puts her arms on my shoulders when we
hug. I find myself laughing about it all of the time. My 10 year
old is passing her shoes to her father and looking down at her
mother. You have to laugh about it...
>
> I will let everyone know what Dr. Weaver says when we see him at
our visit. If anyone has questions for him I would be happy to ask
and report back. Just let me know.
>
> Best wishes to all.
>
> Greta & Abby
>
>
>
>
> ________________________________
> From: Sandy <znandra40@...>
> To: WSSA@yahoogroups.com
> Sent: Saturday, February 7, 2009 1:48:58 PM
> Subject: [WSSA] Hello everyone
>
>
> I have not posted for a while but I do check in every few weeks or
so
> to see how everyone is doing... I'm a rather shy person but this
group
> is unique and a essential form of communication between us, who
live
> our lives with Weaver Syndrome and one site I'm truly at home with
> because as each one of you speak of your child your experiences
your
> question and worries, I see my life with Nathan and at the end of
the
> day we are the only ones who can help one another with all our own
day
> to day experiences which may not be medical but are equally
important
> to us mum living with a child with Weaver Syndrome
>
> With the kindest of regards
>
> Sandy & Nathan (aged 8 tomorrow 8th Feb) xxxxxx
>