Hi Keira

I'm not to sure but I found this on the following link about Dr David
Weaver.



www.healthgrades.com/directory_search/physician/profiles/dr-md-
reports/Dr-David-Weaver-MD-D95C8625.cfm

EMAIL ADDRESS : David.Weaver@...


Nathan and I live in the UK so I have never met him but when Nathan
was about 2 years old I did email Dr Weaver! I recall we didn't wait
to long for his reply and we found him to be such a friendly man! he
answered all our questions and pointed us in the right direction on
the internet where to find more info on Weaver's but it tends to be
in the form of medical text. he concluded that if we feel we ever
needed to email him again not to hesitate in doing so...such a lovely
man I would truly encourage you to email him

Thank you for taking the time to reply to me Keira much appreciated
if you do email lets know how you get on...Good luck

with Kind Regards
Sandy & Nathan xxxxx





--- In WSSA@yahoogroups.com, "Keira James" <kjandjp@...> wrote:
>
> Hi,
>
>
>
> We are another of the infrequent posters to the forum but regularly
read
> with interest how everyone is going.
>
> Our son Oliver will be 5 soon and is making fantastic progress.
>
> We believe Oli is the only kid to be diagnosed with Weaver here in
Australia
> and since the original diagnosis contact with geneticists/experts
has been
> pretty limited as no one really understands or has much knowledge
of the
> situation.
>
> We would like to be able to get in contact with Dr Weaver, in one
way it
> would be nice to at least talk with someone who has more knowledge
and
> understanding of the condition than we have acquired.
>
> If anyone could forward on email address or some other of making an
initial
> contact with Dr Weaver or his team it would be very much
appreciated.
>
> All our best to you all and your families.
>
>
>
> Keira, John, Oliver & Niamh.
>
>
>
> Keira James
>
>
>
> Watervale-Mintaro Road, Watervale SA 5452
>
> PO Box 762, Watervale SA 5452
>
> 08 8843-0178 0412 423 282
>
> kjandjp@...
>
> P Please consider the environment before printing this e-mail
>
>
>
>
>
>
>
>
>
> From: WSSA@yahoogroups.com [mailto:WSSA@yahoogroups.com] On Behalf
Of Greta
> Sent: Sunday, 8 February 2009 2:47 PM
> To: WSSA@yahoogroups.com
> Subject: [SPAM][WSSA] Re: Hello everyone
>
>
>
> Happy Birthday Nathan!! Best of wishes for a wonderful day. It has
> been a while since I last posted. Not much new going on with Abby.
> She turned 10 in September, is 5'9" now and wheres a size 13 in
men's
> shoes. She has started on medication for ADHD which has helped her
to
> focus better during school. We had to try several before we found a
> medicine that worked well for her. She is more emotional now as she
> is in the pre-puberty stage. Dr. Weaver said she will stop growing
> once she reaches puberty, temporarily, so I am looking forward to
> that. We are going to be seeing Dr. Weaver again next month for our
2
> year followup. I am interested in what he thinks and what he has
> learned, if anything. Has anyone else seen Dr. Weaver lately? Have
> you learned anything new?
>
> Hugs and Kisses to all,
>
> Greta & Abby
>
> --- In WSSA@yahoogroups.com <mailto:WSSA%
40yahoogroups.com> , "Sandy"
> <znandra40@> wrote:
> >
> > I have not posted for a while but I do check in every few weeks
or so
> > to see how everyone is doing... I'm a rather shy person but this
group
> > is unique and a essential form of communication between us, who
live
> > our lives with Weaver Syndrome and one site I'm truly at home
with
> > because as each one of you speak of your child your experiences
your
> > question and worries, I see my life with Nathan and at the end of
the
> > day we are the only ones who can help one another with all our
own day
> > to day experiences which may not be medical but are equally
important
> > to us mum living with a child with Weaver Syndrome
> >
> > With the kindest of regards
> >
> > Sandy & Nathan (aged 8 tomorrow 8th Feb) xxxxxx
> >
>