Hi Jacquie and Logan

Thank you for Nathan's birthday wishes...Its so nice to meet you x
I'm sure you have plenty to say or contribute Jacquie... but
sometimes its nice knowing there is a place you can go and ask a
question or whatever ... When ever we have to see any new health
professional or a new doctor they never know anything about Weaver's
but here there is none of that ...do you know what I mean because we
all share this syndrome in various degrees meaning some of our kids
are less abled by weavers than others but that doesn't matter... what
matters is that we all live this disorder...sorry I tend to waffle on
a bit anyway like I said its nice to meet you both, take care


Hugs
Sandy & Nathan xx



--- In WSSA@yahoogroups.com, jacqueline miller <jacq1976@...> wrote:
>
> Hi Sandy
>  
> I dont post that often either as im still new to Weavers and dont
have much useful information to give at the moment.  Happy Birthday
for tomorrow Nathan
>  
> Love from
>  
> Jacquie and Logan xx
>  
> --- On Sat, 2/7/09, Sandy <znandra40@...> wrote:
>
> From: Sandy <znandra40@...>
> Subject: [WSSA] Hello everyone
> To: WSSA@yahoogroups.com
> Date: Saturday, February 7, 2009, 6:48 PM
>
>
>
>
>
>
> I have not posted for a while but I do check in every few weeks or
so
> to see how everyone is doing... I'm a rather shy person but this
group
> is unique and a essential form of communication between us, who
live
> our lives with Weaver Syndrome and one site I'm truly at home with
> because as each one of you speak of your child your experiences
your
> question and worries, I see my life with Nathan and at the end of
the
> day we are the only ones who can help one another with all our own
day
> to day experiences which may not be medical but are equally
important
> to us mum living with a child with Weaver Syndrome
>
> With the kindest of regards
>
> Sandy & Nathan (aged 8 tomorrow 8th Feb) xxxxxx
>