I have not posted for a while but I do check in every few weeks or so
to see how everyone is doing... I'm a rather shy person but this group
is unique and a essential form of communication between us, who live
our lives with Weaver Syndrome and one site I'm truly at home with
because as each one of you speak of your child your experiences your
question and worries, I see my life with Nathan and at the end of the
day we are the only ones who can help one another with all our own day
to day experiences which may not be medical but are equally important
to us mum living with a child with Weaver Syndrome

With the kindest of regards

Sandy & Nathan (aged 8 tomorrow 8th Feb) xxxxxx