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WSSA · Weaver Syndrome Support Association
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Hi Sarah   Message List  
Reply | Forward Message #431 of 481 |
Hi Sarah,
 
Welcome to the group. We;ll be looking forward to catching up with you
 
Our gorgeous little boy is called Harry and is two and a half. He was diagnosed early on at about 6 or 7 months but also has pacchygyria which has caused him to be weaker on his right side. He's coming along great - we are grateful to the services we have such as physio and speech therapy. The weakness on his right side has led him to compensate on his left - and he does pack quite a punch sometimes!
 
Looking forward to hearing from you
 
Siobhan


From: April <ahooburg79@...>
To: WSSA@yahoogroups.com
Sent: Monday, January 19, 2009 2:42:27 AM
Subject: [WSSA] Welcome New Member...Sarah!

Just wanted to welcome our newest member Sarah to the group.
Welcome Sarah! She has a two year old and doctors are suspecting
Weavers.
You have come to the right place!
My name is April; I have a 7 year old son with Weaver Syndrome. He was
diagnosed at about 14 months. He had many health issues and obvious
developmental delays, he was sent for therapy at about 9 months of age.
I was kind of in denial for awhile, thought of many excuses for the
delays. I knew he was big...well anyways, thats a long story from then
till now. My family has been through a lot and learned a great deal on
the way. Any questions you may have or feelings you would like to
express, please do so. There are many wonderful and knowledgeable
mothers on here, I am sure someone will be able to help. Hope to hear
from you soon!
Best Wishes
April
Mom to Devon, 7




Tue Jan 20, 2009 8:30 pm

siobhanma
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Message #431 of 481 |
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Hi Sarah, Welcome to the group. We;ll be looking forward to catching up with you Our gorgeous little boy is called Harry and is two and a half. He was...
Siobhan Magner
siobhanma
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Jan 20, 2009
8:30 pm
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