--- In WSSA@yahoogroups.com, "huggetts" <huggetts@s...> wrote:
>
> Hello,
>
> Ive just joined the group as two of my children have just been
diagnosed with weaver.
>
> I have very little info so far (not had time to really look at the
group message etc yet) but I should be getting something from the
genetics people soon (!). I have three boys, James 8yrs (with) Jack
3 (without) and Joe 2 (with). Ive been told that is extremely rare
and even rarer to have more than one child with weaver. James has
had loads of problems since birth, breathing, behaviour,
propreception, hypertonia, hypotonic etc etc etc and Joe is showing
all the same signs as James and I want to find out if this is all
apart of the syndrome (all the info so far has been about birth
weight, size, bone density and features).
>
> I will try to be online each night at 8ish but things don't
usually go to plan in our house so I cant plan much.
>
> Please email me with anything you might think will help as I would
love to hear from anyone who has any connection to the syndrome just
to know we are not on our own.
>
> Thanks most kindly,
>
> Michelle Huggett
>
> (ps. Im a bit rubbish on a computer)
>
> x

Hello Michelle!
Im so glad you have joined....Please when you have time, read some
of the posts as you may find more info on weaver syndrome or issues
that you can maybe able to relate to in relation to your boys.....

sorry I didnt reply any sooner, Nathan is a little differcult at the
moment! please dont the silence put you off posting anything you
want to express or any questions you may want to know! there isnt
many of us, from my understanding there is less then 40 people in
the world with weavers

Anyway take care, hope we talk soon.

regards....Sandy x