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WSSA · Weaver Syndrome Support Association
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Hi all, a few questions, sorry!   Message List  
Reply | Forward Message #409 of 481 |
Re: [WSSA] Hi all, a few questions, sorry!

Yes, my sons bone maturation is advanced by 3 to 3 and a half years. His teeth came in at normal time, a little late if anything, but he lost them very early. I think he was around four when he lost his first tooth. He has lost 9 teeth so far, four on top, four on bottom and one molar. His bottom ones in front have grown back, as well as the top two front, he is just now getting one of the others beside the front ones. Devons dentist thinks it is part of the advanced bone age, since teeth are a form of a bone.
Puberty...he started this last summer. I did now know, until swim therapy. He was having a hard time getting his wet shorts off after swimming. I was helping him get them off, I noticed a hair, and assumed it was wrapped around (my hair often gets every where...) down by his genitals, thinking it was mine, I pulled it and when I did he said "ouch!" I was shocked! After a closer look he has quite a few, only a few dark ones, but he has "peach fuzz" all over, under his arms, and on genitals. I took him in to see a endocrinologist, he said with the advanced bone age, he could see it happening. Usually it is considered early puberty when it happens before 9 years old.  Devon goes into see him again in 6 months, at that time the doc wants to see what stage he is in, get an MRI and some blood work. He did not want to start hormone injections yet. He thinks this will help slow Devons growth (puberty).
Anyways this is my situation. Let me know if you have any other questions...I will try to answers them. Hope this helps!
April

--- On Thu, 9/18/08, jacq1976 <jacq1976@...> wrote:
From: jacq1976 <jacq1976@...>
Subject: [WSSA] Hi all, a few questions, sorry!
To: WSSA@yahoogroups.com
Date: Thursday, September 18, 2008, 7:35 AM

Did all of your children have advanced bone maturation, exfoliating
teeth and at what age if they have reached puberty, did they start at?

Im having a few issues with Logan at the moment his body is changing
and I have discussed it with my genetisist, but there is so little
information he really is unable to help. Logans hands and feet have
widened an awful lot the last few months and he is also etting skin tas
all over his body. His body is growning at a steady rate but genitals
aren't. I spoke with Dr weaver the other day and he has asked for
information on Loan to be sent from Scotland, which im in the process
of doing, I just wondered if anyone had anything similar.

thank you

jacquie and Logan




Thu Sep 18, 2008 5:47 pm

ahooburg79
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Message #409 of 481 |
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Did all of your children have advanced bone maturation, exfoliating teeth and at what age if they have reached puberty, did they start at? Im having a few...
jacq1976
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Sep 18, 2008
2:35 pm

Yes, my sons bone maturation is advanced by 3 to 3 and a half years. His teeth came in at normal time, a little late if anything, but he lost them very early....
April Hooper
ahooburg79
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Sep 18, 2008
5:47 pm

Hi April   Well I can honestly say im feel like im lost I cant seem to find answers anywhere.  Logan has been sick for about the 6 mths in and out of...
jacqueline miller
jacq1976
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Sep 18, 2008
6:27 pm

First off, I would like to commend you on all you have already accomplished. It is hard knowing if you are doing the right thing when no one else seams to have...
April Hooper
ahooburg79
Online Now Send Email
Sep 18, 2008
7:13 pm
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