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WSSA · Weaver Syndrome Support Association
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Hi all, a few questions, sorry!   Message List  
Reply | Forward Message #408 of 481 |
Did all of your children have advanced bone maturation, exfoliating
teeth and at what age if they have reached puberty, did they start at?

Im having a few issues with Logan at the moment his body is changing
and I have discussed it with my genetisist, but there is so little
information he really is unable to help. Logans hands and feet have
widened an awful lot the last few months and he is also etting skin tas
all over his body. His body is growning at a steady rate but genitals
aren't. I spoke with Dr weaver the other day and he has asked for
information on Loan to be sent from Scotland, which im in the process
of doing, I just wondered if anyone had anything similar.

thank you

jacquie and Logan




Thu Sep 18, 2008 2:35 pm

jacq1976
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Message #408 of 481 |
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Did all of your children have advanced bone maturation, exfoliating teeth and at what age if they have reached puberty, did they start at? Im having a few...
jacq1976
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Sep 18, 2008
2:35 pm

Yes, my sons bone maturation is advanced by 3 to 3 and a half years. His teeth came in at normal time, a little late if anything, but he lost them very early....
April Hooper
ahooburg79
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Sep 18, 2008
5:47 pm

Hi April   Well I can honestly say im feel like im lost I cant seem to find answers anywhere.  Logan has been sick for about the 6 mths in and out of...
jacqueline miller
jacq1976
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Sep 18, 2008
6:27 pm

First off, I would like to commend you on all you have already accomplished. It is hard knowing if you are doing the right thing when no one else seams to have...
April Hooper
ahooburg79
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Sep 18, 2008
7:13 pm
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