Hi all,

Delighted to have found this resource as I have very limited
information about Weavers! We have a gorgeous 25 month old son Harry
who was diagnosed with Weavers at 3 months old. We were devasted
when we found out as it was very much into the unknown for us.
Thankfully we have excellent services available for him for which we
are very grateful.

At 6 months he had his first seizure which turned out to be epilspsy
caused by Pacchygyria (underdevelopment of the brain) He has a
weakness on his right side as a result. As you can imagine again
this was devasting as this was in addition to the Weavers.

Anyway almost two years on he is the most gorgeous little lad, yes -
has a developmental delay but is coming along great. His epilepsy is
well controlled and attends physio, OT and speech therapy. We also
have a fantastic play therapist who visits each week. Harry attends
creche and is getting on fantastic there also. We've had our fair
share of ear infections (until we got Grommits - magic things!)
chest infections and that awful teething process.

We live in Dublin, Ireland and was delighted to see that another
Irish mum was on this site. So Selina, if you are reading this I
woudl love to catch up! We were also told that we were one of a very
small few in Europe.

Anyway am delighted to have found this resource and looking forward
to comparing notes!
Siobhan