I have been reading all the responses to my mail regarding Nathan
and 'bullying' and the biggest comfort is knowing that there are people
no matter how far away, that truly understand what my life is like ...
I have always described Weaver Syndrome as a lonely syndrome because as
we are all aware just how rare this disorder actually is!
At the start of our 'journey'( Nathan's diagnoses) I really felt so
alone like I was the only mother in the world going through what we
were experiencing with our little boy, but knowing you are all here is
such a comfort and a source of strength for me and I needed to tell you
all this and say you all thank you for taking the time and making the
effort to reply to me with your words of support and empathy…Sandy
xxx