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WSSA · Weaver Syndrome Support Association
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Happy Holidays   Message List  
Reply | Forward Message #356 of 481 |
Re: [WSSA] Happy Holidays

Hi Jenny, that is WONDERFUL!!!! Does he have any other words yet? My sons first word was dadda....
Devon is doing OK. We had his sleep study done in Spokane, but now have to go back over to Seattle for another and to see the sleep clinic. He has sleep apnea still, but now we know it is mixed apnea, meaning both obstructive and central nervous system disorders. He had 8 major apnea's that were central nervous system...I think they are going to be dx'ing him with autonomic dysfunction. The testing cannot be done for a couple more yrs to be sure, but he is having a lot of issues that that dx explains, from what I am told. Upping his allergy meds has helped with his infections, so that is an improvement. The pulmonologist also added another inhaler this week, so hopefully we will see a difference in his breathing soon.
His behavior is getting better too. Not as many huge melt downs daily, very nice!!!!
All Devon says he wants for Christmas is a new monster jam PS2 game, so he should be happy Christmas morning!
Hope to hear from you soon.
April
PS My family is amazed at how much Earl and Devon look alike!!!

Hi everyone....just wanted to wish everyone a Merry X-mas and a
wonderful New Year...Hopefully Santa brings everyone what they asked
for!!!!....I got an early Christmas present when Earl finally
said "mamma" for the first time!!!! I send you all my love...Jenny



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Fri Dec 21, 2007 4:50 pm

ahooburg79
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Message #356 of 481 |
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Hi everyone....just wanted to wish everyone a Merry X-mas and a wonderful New Year...Hopefully Santa brings everyone what they asked for!!!!....I got an early...
Jenny
myjenny_80
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Dec 21, 2007
3:40 pm

Hi Jenny, that is WONDERFUL!!!! Does he have any other words yet? My sons first word was dadda.... Devon is doing OK. We had his sleep study done in Spokane,...
April Hooper
ahooburg79
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Dec 21, 2007
4:50 pm

Jenny, I am so happy for you and Earl! This is just the beginning. Keep working hard and you will eventually see the reward. Merry Christmas to you and your...
Greta Holmes
g.lomom
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Dec 23, 2007
12:45 am
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