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Maura   Message List  
Reply | Forward Message #288 of 481 |
Re: re:Sandy

---
Hi Greta

That's really interesting I wonder if there are any other kids with
Weaver syndrome with these 'birth like marks' what would you say are
your biggest challenges with your daughter Abby? and she aware that
she is a bit different compared to her peers and if so how does she
deal with it? because Nathan is not self aware yet, he has not notice
that he is head and shoulders in height over his peer, and has Abby
ever faced any sort of ridicule or bullying from other children? (one
of my worst fears) I hope I have not asked too many questions but
your experiences may reflect some of my own, It s nice to meet you
Greta hope to talk again really soon! Take care both of you

Sandy & Nathan

Liverpool UK





In WSSA@yahoogroups.com, Greta Holmes <g.lomom@...> wrote:
>
> Sandy,
> I read your email and wanted to let you know that my daughter Abby
(age 8, soon to be 9) has the brown birthmarks also. Her largest one
is at the base of her neck just above her sternum. They have watched
it for years and nothing has ever developed. Just wanted to let you
know about that. I feel the same way about Abby as you do
your "little giant". We love her dearly and she has taught us so
much about life. I wouldn't change anything we have experienced
because we have grown so much from having her.
> Best wishes,
> Greta Holmes
> Kentucky, USA
>
>
> ---------------------------------
> Need a vacation? Get great deals to amazing places on Yahoo! Travel.
>





Sun Sep 2, 2007 10:24 pm

znandra40
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Message #288 of 481 |
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Hello! I have posted before but it's been a long time. My daughter Maura was diagnosed with Weaver's when she was 15 months old. She is now 2 1/2 and is 50...
kakane13
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Aug 28, 2007
1:53 pm

Hello, I remember Maura, or hearing about her. My son, Devon, will be 6 in October. Much of what you say about walking sounds familiar. Devon held his...
April Hooper
ahooburg79
Online Now Send Email
Aug 28, 2007
2:35 pm

Hello Kate, I am Greta and have an eight year old daughter that was diagnosed at the age of two. We have been fortunate and Abby has not had the health...
Greta Holmes
g.lomom
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Aug 28, 2007
6:24 pm

... daughter ... is ... currently ... to ... how ... of ... strings ... more ... Hi Kate, my name is Jenny and my son Earl was diagnosed at about 1yr. Luckily...
Jenny
myjenny_80
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Aug 29, 2007
4:59 pm

... Hi Jenny My son Nathan was diagnosed with Weavers at 18months old, started to walk around the same age, Nathan was 'out' of toddlers size nappies at around...
Sandy
znandra40
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Aug 30, 2007
10:55 pm

Sandy, I read your email and wanted to let you know that my daughter Abby (age 8, soon to be 9) has the brown birthmarks also. Her largest one is at the base...
Greta Holmes
g.lomom
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Aug 30, 2007
11:17 pm

... Hi Greta That's really interesting I wonder if there are any other kids with Weaver syndrome with these 'birth like marks' what would you say are your...
Sandy
znandra40
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Sep 2, 2007
10:26 pm

Hi Sandy, It's nice to meet you. I have been reading about Nathan and understand your frustration with the clothing. Sometimes it is the little things that...
Greta Holmes
g.lomom
Offline Send Email
Sep 3, 2007
1:18 pm
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