WSSA : Message: re:Sandy

WSSA · Weaver Syndrome Support Association

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Message #282 of 481 |

re:Sandy

Sandy,
I read your email and wanted to let you know that my daughter Abby (age 8, soon to be 9) has the brown birthmarks also. Her largest one is at the base of her neck just above her sternum. They have watched it for years and nothing has ever developed. Just wanted to let you know about that. I feel the same way about Abby as you do your "little giant". We love her dearly and she has taught us so much about life. I wouldn't change anything we have experienced because we have grown so much from having her.
Best wishes,
Greta Holmes
Kentucky, USA

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Thu Aug 30, 2007 11:16 pm

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Greta Holmes <g.lomom@...>

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Message #282 of 481 |

Expand Messages	Author	Sort by Date
Hello! I have posted before but it's been a long time. My daughter Maura was diagnosed with Weaver's when she was 15 months old. She is now 2 1/2 and is 50...	kakane13	Aug 28, 2007 1:53 pm
Hello, I remember Maura, or hearing about her. My son, Devon, will be 6 in October. Much of what you say about walking sounds familiar. Devon held his...	April Hooper ahooburg79	Aug 28, 2007 2:35 pm
Hello Kate, I am Greta and have an eight year old daughter that was diagnosed at the age of two. We have been fortunate and Abby has not had the health...	Greta Holmes g.lomom	Aug 28, 2007 6:24 pm
... daughter ... is ... currently ... to ... how ... of ... strings ... more ... Hi Kate, my name is Jenny and my son Earl was diagnosed at about 1yr. Luckily...	Jenny myjenny_80	Aug 29, 2007 4:59 pm
... Hi Jenny My son Nathan was diagnosed with Weavers at 18months old, started to walk around the same age, Nathan was 'out' of toddlers size nappies at around...	Sandy znandra40	Aug 30, 2007 10:55 pm
Sandy, I read your email and wanted to let you know that my daughter Abby (age 8, soon to be 9) has the brown birthmarks also. Her largest one is at the base...	Greta Holmes g.lomom	Aug 30, 2007 11:17 pm
... Hi Greta That's really interesting I wonder if there are any other kids with Weaver syndrome with these 'birth like marks' what would you say are your...	Sandy znandra40	Sep 2, 2007 10:26 pm
Hi Sandy, It's nice to meet you. I have been reading about Nathan and understand your frustration with the clothing. Sometimes it is the little things that...	Greta Holmes g.lomom	Sep 3, 2007 1:18 pm

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