Hello! I have posted before but it's been a long time. My daughter
Maura was diagnosed with Weaver's when she was 15 months old. She is
now 2 1/2 and is 50 pounds. She has had heart surgery and is in
remission from neuroblastoma. I know that there are other cases of
neuroblastoma in Weavers and was curious if any of the members have
children that have had it. Maura also has issues with the way her
brain developed and doesn't properly move her left side and currently
doesn't walk. We have made a lot of progress and see her possibly
walking someday. Since she doesn't walk she obviously isn't close to
potty training. Pampers recently started making a size 7 diaper
(cheapest place to find it is on www.amazon.com) but I don't know how
much longer she'll be in it. We were told at the doctors that the
smallest depends was her option, I was curious if anyone else knew of
any other options of diapers. I also saw in one of the email strings
that there are other support groups of other overgrowth syndromes,
and was curious where these were.

I agree with one of the posts, I wish more people posted. I feel
like I'm on an island with Maura's issues and would love to chat more
with people who understood.

Hope to start a chat!
Hugs and prayers,
Kate and Maura (North Carolina)