--- In WSSA@yahoogroups.com, April Hooper <ahooburg79@...> wrote:
>

April Hi...Of course I remember you! Its so encouraging to hear Devon
is doing soooo well! Devon had his fair share of problems I recall and
its great news to hear he is doing so well. and you, how are you doing
April? I can relate to the 'new obstacles' thing Nathan seizures have
almost gone(fingers crossed) its been a good 18m since we last
witnessed one!

The thing with Weaver Syndrome because it is such a rare disorder we
never can know or predict what to expect in the future for our
children and nor can anyone else all health professionals included! so
what I tend (or should I say TRY and do) is expect the best of Nathan
(in a realistic term) and you know he always manages to live up to our
expectations, it may take longer but he get there

I regret my absence from this group but I dont know if you recall my
daughter Rebecca was at the time attack by a big dog while playing in
the park! (our house is actually situated just inside this park) it
has left her scared on the side of her face and head but at the time
our family just fell apart it was like you cope with so much with our
'Weaver' kids that this incident with Rebecca seems to my our family
crumble...it has taken a while but we managed to pull every thing back
together.

once again April thank you for your reply it has truly made my day!
hope to talk to you again really soon all my love



Sandy & Nathan










> Hi Sandy!!! How are things going? It has been a long long time! Do
you remember me? My son's name is Devon and he will be six October
25th. Devon is doing OK. I'm sure he has made lots of progress since
we spoke last, but new obstacles keep coming. We finally got him over
the (for the most part) sensory dysfunction, he takes baths now
voluntarily, keeps seat belts on etc, it is nice!
> I hope to hear from you soon, it is good hearing from you again
after so long! I have talked with a care giver from the UK taking care
of a child with weaver syndrome, maybe it was two? on another site for
overgrowth syndromes recently too. Not a whole lot goes on in this
one, I wish more parents talked openly on here, this is a support
group for our kids!
>
> Best wishes!
> April from WA, USA
>
> Sandy <znandra40@...> wrote:
>
>
> Its been a long time since I was last a visitor here in this lovely
> group!
>
> Hi to everyone.....My name is Sandy, my son Nathan was diagnosed with
> Weaver Syndrome when he was approx 18 months old, he is 6yrs now and
> doing ok
>
> All I wanted to do really was introduce myself to you all and
> hopefully some of you might say hi back, which would be great.
>
> with kind regards
>
> Sandy
>
>
>
>
>
>
>
> ---------------------------------
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