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WSSA · Weaver Syndrome Support Association
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Hi Its Been along time!   Message List  
Reply | Forward Message #269 of 481 |
Re: [WSSA] Hi Its Been along time! YES it has!

Hi Sandy!!! How are things going? It has been a  long long time! Do you remember me? My son's name is Devon and he will be six October 25th. Devon is doing OK. I'm sure he has made lots of progress since we spoke last, but new obstacles keep coming. We finally got him over the (for the most part) sensory dysfunction, he takes baths now voluntarily, keeps seat belts on etc, it is nice!
I hope to hear from you soon, it is good hearing from you again after so long! I have talked with a care giver from the UK taking care of a child with weaver syndrome, maybe it was two? on another site for overgrowth syndromes recently too. Not a whole lot goes on in this one, I wish more parents talked openly on here, this is a support group for our kids!
 
Best wishes!
April from WA, USA

Sandy <znandra40@...> wrote:


Its been a long time since I was last a visitor here in this lovely
group!

Hi to everyone.....My name is Sandy, my son Nathan was diagnosed with
Weaver Syndrome when he was approx 18 months old, he is 6yrs now and
doing ok

All I wanted to do really was introduce myself to you all and
hopefully some of you might say hi back, which would be great.

with kind regards

Sandy


Got a little couch potato?
Check out fun summer activities for kids.
Wed Aug 22, 2007 2:45 am

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ahooburg79
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Forward 		Message #269 of 481 |
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Its been a long time since I was last a visitor here in this lovely group! Hi to everyone.....My name is Sandy, my son Nathan was diagnosed with Weaver... 		Sandy
znandra40
Offline Send Email 		Aug 21, 2007
7:36 pm

Hi Sandy!!! How are things going? It has been a long long time! Do you remember me? My son's name is Devon and he will be six October 25th. Devon is doing OK....
April Hooper
ahooburg79
Offline Send Email 		Aug 22, 2007
2:45 am

... April Hi...Of course I remember you! Its so encouraging to hear Devon is doing soooo well! Devon had his fair share of problems I recall and its great news...
Sandy
znandra40
Offline Send Email 		Aug 22, 2007
7:46 am

Yes I do remember about Rebeca, how is she doing, besides scared of dogs now? Scaring on the face for a girl is horrible. How old is she? A nice setting for...
April Hooper
ahooburg79
Offline Send Email 		Aug 22, 2007
2:54 pm

... O my goodness April it s like I'm reading all about Nathan! No really I swear its so amazing, Nathan had been under the care of a very good dentist who...
Sandy
znandra40
Offline Send Email 		Aug 22, 2007
8:14 pm

It probably will not be long until Devon's father has to stay at home with him. He is getting so big and with the aggressive behaviors....it scares me. One...
April Hooper
ahooburg79
Offline Send Email 		Aug 22, 2007
8:50 pm

-- Hi April! Nathan is six now and he is in aged 10yr old clothes and in a size 3 shoe (correct me if Im wrong but I think our shoe sizes differ slightly from...
Sandy
znandra40
Offline Send Email 		Aug 27, 2007
9:10 pm
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