--- In WSSA@yahoogroups.com, "jesstim3223" <jesstim3223@...> wrote:
>
> Hi, just wondering if there is anyone out there who we could talk
with--
> my baby niece (one month old) was diagnosed with Weaver's, and we
don't
> know ANYONE with this condition. Could somebody reply so we could
> maybe talk and share stories?
>
Hi my name is Danielle and my sons name is Shane we live in Georgia. I
know how you feel my Shane was diagnoised at 14 months old and we are
the only case in Ga besides his dad who is unoffically diagnoised. If
you need to talk I will listen you can email through here or to my
email ddauvenshine@... I willl listen and help explain the best I
can. Danielle Auvenshine