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WSSA · Weaver Syndrome Support Association
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Weaver Syndrome Posting   Message List  
Reply | Forward Message #250 of 481 |
Re: [WSSA] Weaver Syndrome Posting

That sounds great.  I have posted my email address before, but only had replies via this site.???
Anyway, about your little girl? What kind of cancer did she have? So glad to hear its in remission!! Did she by any chance have a ASD? (whole in upper chamber) What were the synptoms? What other complications has she had? I hope you and your family has plenty of support, you will be in my prayers. Where do you live? I'm way up in north east Washington, within 90 miles of canadian border and 90 miles to Idaho.
My personal email is ahooburg79@...

kakane13 <foodykane@...> wrote:
I know that everyone is getting so frustrated with these spam postings
(I sure am) there are so few of us as there is...does anyone else just
want to email back and forth? Just a reminder my daughter is Maura 2
years old, Weaver Syndrome, heart surgery and cancer (currently in
remission). I really want to get a good strong dialogue as I'm sure
with all of you I feel alone and don't want to lose the line of support
that I do have.

Any takers?

Kate (Maura's mom)



Pinpoint customers who are looking for what you sell.

Wed Jun 6, 2007 2:11 am

ahooburg79
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Message #250 of 481 |
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I know that everyone is getting so frustrated with these spam postings (I sure am) there are so few of us as there is...does anyone else just want to email...
kakane13
Offline Send Email
Jun 4, 2007
11:01 pm

That sounds great. I have posted my email address before, but only had replies via this site.??? Anyway, about your little girl? What kind of cancer did she...
April Hooper
ahooburg79
Offline Send Email
Jun 6, 2007
2:13 am
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