Hello to all! We are in Canada (Niagara Falls area) with our daughter Rachel -
another
Weaver baby. She is now 6 months, and we would love to correspond regularly
with
other Weaver parents, particularly of Weaver girls. I have also corresponded
with Dr.
Weaver via email.

Rachel is a bit of a mystery in that she is not growing quickly at all. A
significant
characteristic of this syndrome is the overgrowth (or so we thought), so the
very slow
growth (50th percentile) is a mystery to us. Anyone else have that?

Yes, we have the scoliosis and other characteristics found on the printouts of
Weavers... As for how pronounced, it hasn't been dealt with because the docs
and
therapists are working on her feet and sucking/swallowing.

Let's keep in touch.

Sara (and husband Ralph and daughters Emily, Sophia, and Rachel)