Hi everyone
my name is selina and i have a 4 year old son called charlie who has
weavers syndrome.We live in Ireland and we believe charlie is one of
two children in ireland who has weavers .
I am so happy to have found this site and yet a little nervous!!
I am so looking forward to sharing with you all
Charlie is a fantastic little boy who is doing really well .he is in
mainsteam school with a special assistant,everyday he never ceases to
amaze us .
do any other children have scholosis???
any info on how to contact Dr .weaver.
i would relly love to hear from any other parents of similiar aged
little boys.
Really looking forward to hearing from you
hope all the children are well
best wishes selina