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WSSA · Weaver Syndrome Support Association
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Reply | Forward Message #160 of 481 |
I read with interest the posts from each of you. I've been
there.... My son, Kendall, is now 26 years old and is doing so very
well. He has full time work as a wheelchair agent at our local
airport, volunteers as a Guide at a local hospital, plays all sorts
of sports for Special Olympics, and is active in a singles group at
Church!
Kendall had PT, OT and Speech Therapies for years and now he
communicates full. We were told that he would likely not have
enough balance to walk unaided - but he rides his bike and/or the
bus to get anywhere in town. We were told he would not speak, and
we worked for 18 months to get a "G" sound out of him. (We also
taught him enough sign during this time to enable him to communicate
his needs.) We were told he wouldn't have enough dexterity to
communicate in writing, but he's our best "message taker" at home
and communicates well with callers. Hang in there!
I've also noticed that there are a couple of members to this group
who live in England. My husband and I are going on a trip to the UK
for two weeks beginning next Tuesday. It is a first, and likely the
only, visit overseas. I'd be interested in knowing if any of you in
England might be in the areas we will be traveling. You could
contact me directly at "acromar@..." if you would like me to
see if we could get together!
You are all in my thoughts as you struggle in the hard times....
Know that there are great times ahead!
Sincerely,
Alene Cromar
Colorado Springs






Wed Aug 23, 2006 3:52 am

alenecromar
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I read with interest the posts from each of you. I've been there.... My son, Kendall, is now 26 years old and is doing so very well. He has full time work as...
alenecromar
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Aug 23, 2006
4:37 pm
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