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My son, Alex, started walking at 15 1/2 months. we did lots of therapy for him, though. He also hated to walk on carpet. I think it was not stable enough for him. I have no doubt that Emma will walk. I know it is worrisome, but she will do it on her own time. she has the rest of her life to do it. and when she does, it will be so exciting! Hang in there! As for speech, Alex is now 17 months, and still does not have one word. We teach him sign language, and he has about 7 signs he uses consistently. We tried speech therapy for a while, but they wanted to see more progress in him before they saw him again. I take it as it is. I am here to help him reach his full potential. If it means he doesn't talk, then I teach him sign so he can communicate. and then he will teach others. It is nice to see a post on this site. I belong to the Sotos syndrome group because there
are a lot of the same issues. They have several posts a day. But i like communicating with others who have kids with Weavers. It makes me feel like less of an outsider.
Mary
sandra239656 <sandraswift@...> wrote:
sandra239656 <sandraswift@...> wrote:
--- In WSSA@yahoogroups.com , "dora7417" <dora.alaminos@...> wrote:
>
> Hi to you all again. It has been some time since I have been able
to
> spend a moment reading and catching up. We have just come back
from
> a months holiday at my parents home in Spain and the rest has done
> us all good. Now its back to the routine of appointments and
> specialists etc etc. I'll admit to feeling a little sick at
having
> to come back to the real world!
>
> Emma is two now but is still not walking and weighs over 32lbs..
Our
> Physio talked about stepping up the exercises after the summer but
> she also stressed that there are no guarantees that Emma will
walk..
> I cannot accept this. I remember reading that there was another
> little boy .. Brandon I believe who was a late walker.. Is he
> walking now?
>
> Emma is still not vocalizing, the occasional humming and excited
> noises is all we have at the moment.. Were any of your children
> really late at vocalizing?
>
> With respect to a question raised by another mother regarding the
> chances of having another child with weavers, a lot of us have
other
> children that are fine.. so surely the chances of having a second
> child with weavers must be slim! I was surprised to see that DR
> Weaver had suggested the chances of being as high as 50%. I too
> want to add to my family so that Emma has a good support system in
> place and I was waiting for Emma to start walking and be potty
> trained... oh and to win the lottery!
>
> Hope you have all managed to have a decent brake and that all the
> kids are doing okay.
>
> best wishes
> Dora
>HI DORA I JUST THOUGHT I WOULD EMAIL YOU . I HAVE JUST JOINED THE
GROUP IN THE LAST COUPLE OF DAYS. HOW IS EMMA NOW? SO MUCH OF WHAT
SAID IS A COMPLETE REPLICA OF WHAT MY SON LIAM WENT THROUGH HE 7 NOW
AND HE IS A VERY HEADSTRONG BOY. I HAVEW CHOSEN NOT TO HAVE A SECOND
CHILD BECAUSE AS WELL AS WEAVERS LIAM WAS AKLSO BORN WUTH RARE SKULL
DISORDER. I HAVE ENCLOSED A PICTURE OF LIAM
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